• lola08's Avatar

    lola08 started following

    User: spicekitty57

    over 3 years ago
  • lola08's Avatar

    lola08 wrote on spicekitty57's wall

    You'll be glad you found this support group. It can be very helpful when we have a question & want some feedback - especially if it's at night or the weekend when you can't reach your nurse or doctor. Feel free to follow me - sounds like we might have a several things in common. I was diagnosed in '08 & my recurrence was 4-13 - what a blow!!! Thank goodness it was detected early & my meds were changed quickly. For now, everything is stable - I was very happy with NED the previous 5 yrs but for now I'll take "stable".

    over 3 years ago
    2 Comments
    • spicekitty57's Avatar
      spicekitty57

      thanks for the welcome! i had breast cancer in 07 and now has spread to bones! i cannot get my dr to give me even an approx prognosis! have any idea?

      over 3 years ago
    • Gabba's Avatar
      Gabba

      I would ask for a second opinion in the hopes of getting a physician who is willing to communicate with you!

      over 3 years ago
  • lola08's Avatar

    lola08 started following

    User: barbdee

    over 3 years ago
  • lola08's Avatar

    lola08 started following

    Question: Have crossed the bridge to Stage IV

    over 3 years ago
  • lola08's Avatar

    lola08 wrote on karen1956's wall

    I saw where you said you were on AIs for awhile & then said enough!! What kind of side effects did you have? I have been on Arimidex for 1 yr. & am starting to have pain in my hands.

    over 3 years ago
    1 Comment
    • karen1956's Avatar
      karen1956

      I started on Arimidex and by 5 months I developed CTS (carpel tunnel syndrome) in both wrists...severe in right and starting to have nerve damage and moderate in left. Had surgery on right wrist. While waiting to do left wrist, had exchange surgery and then went of AI's and tried Tamox. While on tamox the CTS went away in the left hand. I also had horrid, horrid joint pain and swollen joints on Arimidex. Finally tried Aromasin (tried all the AI's) and developed deQuervanes tendonitis in both wrists. Two shots of cortisone did not provide relief so ended up with surgery on both wrists. Also struggled with insomnia, depression, anxiety, cognitive issues and the list goes on. For me, it was affecting my QOL of life in all areas. 3 1/2 years was enough. This month is 4 years since I quit. G-d willing NED will continue to be my friend for a long time. I see my onc the end of the month for my 6 month check up.

      over 3 years ago
  • lola08's Avatar

    lola08 started following

    Question: What do you know about Xgeva for bone re-growth. Is it effective? Are there side affects?

    over 3 years ago

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