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    lovinglife wrote on steph11's wall

    Hi, I live in Greencastle, IN and am also a Stage IIIb survivor. I was diagnosed in May 2010. Had my surgery and chemo at IU Med. Center on the IUPUI campus.

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    User: dmholt1957

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    lovinglife asked a questionBreast Cancer

    Blood work vs. scans post treatment

    7 answers
    • Ydnar2xer's Avatar
      Ydnar2xer

      My onc wasn't going to do either, but since I'm already a two timer, he finally agreed to my protests and I get a blood test to check markers every 6 weeks. Just had it today, as a matter of fact. I felt I needed some reassurance the cancer isn't coming back. The first time, I didn't need that reassurance. I KNEW I was done with cancer! Sadly, 9 years later, it returned.

      over 3 years ago
    • Clyde's Avatar
      Clyde

      I get blood work at every visit. He wanted to add scans but I think that was to make money for the hospital rather than because I needed them (he couldn't give me a good answer to why I needed scans). My blood work always comes back clear and I'm now on longer breaks between visits. However, I don't take them for granted........as melanomamama can tell you, we have to stay vigilant for the rest of our lives, clear blood work or not.

      over 3 years ago
    • baridirects' Avatar
      baridirects

      I just had this conversation with my oncologist...I'm into the radiation phase of my treatment, and therefore wanted to start the planning for my long-term management. He told me that my baseline tumor markers would be drawn at the end of radiation, and quarterly after that...he specifically mentioned CEA and CA 15-3, both of which are watched over time. If the numbers trend upward, he will order scans to see what's happening. As my disease was relatively far advanced when I was diagnosed, we've decided together to be vigilant without being obsessive. I had baseline whole body CT and bone scans done prior to my surgery in the spring, to 1) confirm that I did not have hidden metastatic disease at the time, and 2) to get views before treatment that can be compared to later scans. He recommended, for my peace of mind, that the scans be repeated yearly, or perhaps twice a year, but we'll see how the journey goes.

      Part of the path requires that we be very self-aware of changes in our own bodies...for example, a cough that doesn't go away with the usual treatment...and quickly raise the flag with our oncologists so that they can be checked out. Better to have a false alarm here and there than to ignore something that requires intervention.

      Hope that helps-

      Namaste, Christine

      over 3 years ago
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    lovinglife asked a questionBreast Cancer

    Bone scan

    7 answers
    • SueRae1's Avatar
      SueRae1

      I get bone scans in addition to Chest CT and MRI w/contrast of my abdomen and pelvis every 3 months as part of my treatment plan. My regular insurance company paid for my first one, and I have been on disability and Medicare for the rest, and they paid for all of them. In fact I didn't start having bone scans until my breast cancer metastasized last April. When I was just being treated for advanced Kidney cancer I only Had the CT & MRI

      over 3 years ago
    • flamingogirl's Avatar
      flamingogirl

      I just finished my treatment and will be getting my first scan soon. My oncologist told me he will probably order another one in 6 months just to be sure since my cancer was an aggressive one. Then I guess play by ear from there. This is still all new to me, so I am glad you asked this question. I never even thought about asking it. Good Luck!

      over 3 years ago
    • karen1956's Avatar
      karen1956

      I am 7 years out from Dx....my onc does NOT do routine scans.....I've not had any scans since Dx....if a patient is symptomatic he will do a scan....I am on a 6 month schedule with him...he does tumor markers, CBC, CMP, physical and history at each appt. Personally, I'm happy to not have any scans....

      over 3 years ago
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    Question: Bone scan

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    lovinglife wrote on Ladykarla's wall

    Hi, I am somewhat of a neighbor of yours. I live in Greencastle, IN. I am coming up on my third year of survivorship! Where are you receiving treatment? I had mine at the Simon Cancer Center at IU Med. Center.

    1 Comment
    • Ladykarla's Avatar
      Ladykarla

      I am receiving my radiation at St. Francis Mooresville with Dr. Garrett and Dr. Val. They are wonderful!

      almost 4 years ago