• GregP_WN's Avatar

    GregP_WN wrote on Lpoet1111's wall

    Hello and welcome, we are sorry for your diagnosis, but we are happy to have you with us. Please feel free to join in the conversations. Here is a link to our cancer dx page, Take a look at it to get you started on some information. You will notice at the left side of that page a listing of most types of cancer. You can scroll down to find your diagnosis. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started with the help you need right now.

    https://www.whatnext.com/conditions/cancer/

    If you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the database to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

    Thanks for being with us and let me know if I can help you find any information on the site.

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    GregP 3X Survivor
    WhatNext Community Mgr

  • kalindria's Avatar

    kalindria wrote on Lpoet1111's wall

    Hi Lpoet111! Welcome to WhatNext.com! I'm so very sorry to hear of your diagnosis but you've found a great place to ask questions, get information, and share experiences. I was stage IV at my diagnosis too and I'm still here more than five years later so please know there's still plenty of hope.

    Seems like we've had an influx of stage IV ovarian cancer survivors lately - I hate to see that but this is a great place for us to share our experiences and support one another.

    Are you a poet? I am too. And I'm a former California girl - I lived for many years in the Golden State in San Diego, Santa Cruz, San Rafael, Temecula, Tulelake, and Sunnyvale. There are days I miss the warmth but I adore the trees I look out on every day here north of Seattle. Plus, I love the rain.

    A few months ago, I recorded a series of videos for WhatNext about my cancer journey. You may find them helpful. I've included a link at the end of this message should you wish to check them out.

    WhatNext.com is a great place for everyone, from the newly diagnosed to those of us who've been living with cancer for some time - friends and loved ones too! While you're here at WhatNext.com, check out the questions and experiences of other folks here. You can find people who've had the same cancer, surgeries, chemotherapy and experiences should you wish. It's often reassuring to know others have been through what you're facing and thrived. I also recommend the PINBOARD - there are often humorous or uplifting posts that can make your day. Definitely worth checking out.

    https://www.whatnext.com/video_pages/ovarian_cancer_videos_kalindria

    In the meantime, I'm here if you have any questions or want to chat.

  • Lynne-I-Am's Avatar

    Lynne-I-Am wrote on Lpoet1111's wall

    Hi Lpoet1111, welcome to the site. Like the other WhatNexter’s I am skeptical about seeking your medical care in Mexico. What about MD Anderson in Texas or closer to home , UCSF in San Francisco ? Both are among the top five cancer hospitals in the United States..I would also like to advise you to watch a video on WhatNext by kalindria, she is a five year, almost six year , survivor of stage IV ovarian cancer who is dealing with recurrence. She is a spunky lady living her life in and out of maintenance therapy. There is no one treatment fits all for any survivor but I really think the best options for ovarian cancer treatments are right here in the United States. Wishing you better days and success in any medical decision you make going forward.

  • macfightsback's Avatar

    macfightsback wrote on Lpoet1111's wall

    Welcome Lpoet1111,.
    Much can happen in 4 years. It would be helpful to learn more about your cancer journey so far. For example, how many reoccurrences, treatments, second opinions, how your general health is right now, what is going on with your cancer at the moment to name a few. Of course, where in Mexico are you considering treatment? It is the doctors and the safety and efficacy of their treatment which will make a difference . There are great resources here too. Have you been in any clinical trials? There are challenges to traveling to another country to consider. If you would be more specific, we might be able to advise you. I was diagnosed stage 3C and I am probably having a reoccurence myself, the biopsy of a pulmonary nodule later this month will reveal more. I understand wanting to explore all possible options for treatment. There are some slick con artists out there who claim miraculous cures. I hope that is not what is going on in your situation. They prey on us when we are most vulnerable. There are also new treatments, research, and clinical trials that are helping us live longer and with a higher quality of life. I know that is what we all hope for and work toward.
    Wishing you the best.

  • Melbirk's Avatar

    Melbirk wrote on Lpoet1111's wall

    So sorry to hear that you have had a recurrence. Instead of considering treatment in Mexico, maybe you should get a second opinion on your options from a different Gyn Onc. Since no treatments are approved by the proper authorities in Mexico, you have no guarantee of the purity of the treatment that you are receiving.
    Good luck on your journey!

  • Lpoet1111's Avatar

    Lpoet1111 shared an experience

    Decision Point (Need to go to Mexico for new treatment??)

    1 Comment
    • kalindria's Avatar
      kalindria

      I wouldn't. Try everything the doctors here in the States have to offer before you opt for something less mainstream. There's a reason the call the normal treatment for ovarian cancer (or OVCA) "the gold standard" - it's because it almost always works. The difficulty is that OVCA had a tendency to recur. Mine has twice. Then my doctors just try another treatment. And new treatments are being developed all the time. It's not fun but it's definitely doable and you can lead a mostly normal life while undergoing treatment. I even have hair!

      Before you head South of the border, shoot me a message and let's talk. As someone who lived for decades in San Diego, I know lots of folks who go to Mexico for medical or dental care but when your life actually depends on your treatment, I'd be hesitant to risk it.

      2 months ago