• LuLux4's Avatar

    LuLux4 asked a questionBreast Cancer

    Radiation therapy more information

    13 answers
    • FemaleinMotion's Avatar
      FemaleinMotion

      Have you had the BRCA genetic test done yet? It might give you a better picture about your risks for recurrence. God bless!

      over 3 years ago
    • jad's Avatar
      jad

      No one, not the best surgeon, the best oncologist or the best radiologist can absolutely predict what will happen. They all deal in probabilities. That is the frustrating part about cancer.So I believe that the more artillery you have at your disposal, the better your chances are. Compared to surgery and compared to chemo, radiation is no biggie. Yes, the equipment is noisy and scary and moves around very spookily - and yes, you might feel tired. But that is temporary. You will recover.

      over 3 years ago
    • Roadrunner's Avatar
      Roadrunner

      I went thru the same questions as you did. My surgical path report came back with a focal positive margin. My oncologist said not to worry about it!!!!!!! I got three second opinions and ALL of them said to do the radiation. The top radiation oncologist in our city gave me a study that will be coming out soon covering the past 25 years that showed the same situation with my small positive margin increased my chances by 25% and he said in his business that was way to high so I started radiation the very next day and have not looked back. I want to do everything I can to prevent this monster from coming back and if it does I can be content with myself that I did everything to prevent it. If you are unsure get a second or third opinion. Be comfortable with your decision now and in five years from now.

      over 3 years ago
  • LuLux4's Avatar

    LuLux4 started following

  • LuLux4's Avatar

    LuLux4 asked a questionBreast Cancer

    should i get radiation therapy

    7 answers
    • GregP_WN's Avatar
      GregP_WN

      During my first dx 26 years ago, I had chemo rounds then I was supposed to get 30 radiation tx's. I started the rads and at 25 they stopped them, said I didn't need them anymore. I was good to go. 6 months later the cancer returned. Now, I have always wondered if I would have gotten the final treatments would it have come back. At the point where I stopped I would have gladly completed the treatments, they weren't that bad.
      So for me, if I was given that choice I would take the rads to be in hopes of being done with it, when your actually done. Wish you the best!

      over 3 years ago
    • SueRae1's Avatar
      SueRae1

      I personally would go for radiation,cancer is a tricky devil, and even though you can not see it, stray cells can be lurking around, radiation is one way that helps make sure they can get as much of these cells as possible, the radiation oncologist made a strong case for her decision,It's interesting that your oncologist sent you for consultation with a radiation specialist, and decided against the treatment she recommended.

      I strongly believe in getting a 2nd opinion, or in your case a 3rd. Another set of eyes and experience can only help you put together the best treatment plan for you. I hope you have the time to speak with another dr by the end of the week.

      over 3 years ago
    • Roadrunner's Avatar
      Roadrunner

      My oncologist told me that I did not need radiation after my surgical path report came back with a positive margin. Personally, I didn't feel good about that so got three different opinions and all three said yes get the radiation. Tomorrow is Friday and then next week is my last week of 7 weeks of rads. I am burned, sore, however, no regrets for going thru it. I feel like my friend (the big radiation machine is my friend) and the radiation therapists are awesome people. I feel like I am giving myself the best chance and no reoccurance. I had radiation Monday thru Friday and it just got to be a daily thing to do. The people at the cancer center where I go are the sunshine of my day.

      over 3 years ago
  • LuLux4's Avatar

    LuLux4 posted an update

    Hello everyone, just thought I would bring you up to date with what has been happening with me. Well I had a double mastectomy this past Friday. After having a partial mastectomy in April and them finding more cancer I did not want to take the risk of doing another partial and having more cancer being found.
    At first I was just going to do the one side but after talking with my family and doctor's I decided to do the double.

    I am handling it ok pain wise but I must say I do have my moments. My husband and I had to change the bandages yesterday for the first time and I have to admit I was not prepared enough for what I would see. Lets just say it was another melt down for me. And dealing with the drains is not as bad as I thought it would be, but having to sleep on my back really sucks, sometimes I don't know if the lower back pain I am getting is worst than the healing pain.

    I also had the BRACA test done for generic testing for the cancer gene. And thankfully that came back negative. I do meet with my oncologist on Thursday to discuss treatment, he did mention something about Chemo but I wasn't clear on what he was saying at the time. So that will be once of the questions asked on Thursday.

    I will keep you updated on what is going on with me.

    Talk to you soon

    2 Comments
    • penny364's Avatar
      penny364

      God bless you! I hope your worries are over now and life will be peaceful once again. We all deserve a break! Best wishes for a speedy and painless recovery.

      about 4 years ago
    • GregP_WN's Avatar
      GregP_WN

      Sorry for the traumatic view of your new reality you received. It's hard. Even for me, a guy, when I looked at my neck and how I look now I was mad, sad, I don't know what all. I just looked at myself and said well, now I'm a freak. But I have looked at it enough that I am used to it and it's just "me". People occasionally ask what happened to me but not much, so anymore it's a non-issue. Hope you heal well and can move on!

      about 4 years ago
  • LuLux4's Avatar

    LuLux4 posted an update

    Hello again I really appreciate all the input, after talking to my oncologist I have decided to wait on the 2nd surgery. He said that when the pathology report came back they found another 5 cells that are cancer. I asked if they were going to change my diagnosis from stage 1 to another stage and he told me no. That the cells that they are seeing in the pathology report are just starting to form. And that they would not have shown up on any of the tests that they ran before this surgery.

    He is also running the BRAC test on me. This is where they test your genes to see if you are carrying the cancer gene. Anyway I have to wait another two weeks for the results.

    Depending on these results I will have another decision to make. If I want to get another surgery or if I want to get a mastectomy. My other concern now is if I do go for the 2nd surgery and the cells come back positive a 3rd time it will mean a 3rd surgery. The oncologist also told me that if this test comes back positive he would not hesitate having me get a double mastectomy.

    If I go with my gut I won't even hesitate getting a mastectomy. But my family and I are just waiting for the results from the test to come back then more discussions with the doctor's before I do make my final decision. I will see my surgeon on Tuesday for a follow up after surgery and hopefully get some clarification from her. I really hate being in this position a second time and can not wait for the next two weeks to be over with.

    Until then I am still healing from the first surgery and as my precious daughter said "mom just think of it as giving your body two more weeks of recovery before you put it through another surgery."

    I will keep you updated during the next two weeks. LuLux4

    1 Comment
    • GregP_WN's Avatar
      GregP_WN

      I'm glad you were able to find some help on the site. Let us know if you need further help, always someone around to help.

      about 4 years ago
  • LuLux4's Avatar

    LuLux4 asked a questionBreast Cancer

    How common is a 2nd surgery after a partial mastectomy?

    10 answers
    • DianaL's Avatar
      DianaL

      Hi, I went through what you did with a lumpectomy and sentinel node removal. Op findings looked great but when the final path came back not so good. I had two positive nodes and they found a second sneaky little cancer hiding behind the first. My surgical oncologist gave me the choice of a single mastectomy. I talked with my medical oncologist and his main question was did I want to go through this again--peace of mind is a wonderful thing. I was 65 at the time and we decided to go with a bilateral so that we never had to go through this again. I am being reconstructed now and quite happy with our decision. (My husband was a part of this from beginning to end and so supportive).

      about 4 years ago
    • grandmajean5's Avatar
      grandmajean5

      Dear Lulu4,

      I went through the same thing as you with the first lumpectomy not getting the whole tumor. The ultrasound showed it to be 1.2 cm and since the surgeon can't actually see the cancer cell, he/she has to go with the report. Even though my surgeon removed extra to try to get it all, when the report came back from the lab, the margins were not clear and it turned out the tumor was actually 3.2 cm. I opted for a 2nd lumpectomy, no chemo and 33 rounds of radiation. All went well, but I really wish I had gone with the bilateral mastectomy so that I wouldn't have to go through it again. My prayers will be with you. Good luck.

      about 4 years ago
    • Bug's Avatar
      Bug

      Hi, LuLux4. I also had a second surgery. I had a lumpectomy on a Monday and on Friday the surgeon called and said that one of the margins was clear but very narrow - I believe she said it was 1 mm. Apparently, in some countries that is the norm and folks don't worry about it but she wanted to ask me if I wanted to go back for more tissue. I asked her what she would do if it was her. She sighed and said, "I don't know." (Later on I figured she probably didn't want to answer so as not to sway me. That isn't a criticism, by the way, just a thought.) Anyway, she said if I am the type to lay awake at night and worry about it that I'd probably want to do it for the peace of mind. If it doesn't bother me then skip it. Well, I am definitely a worrier so I had a re-excision about a week later. I have two sisters who had DCIS and they had lumpectomies and one of them had to go back to get clear margins. I know where you're coming from, LuLux4. I was thrown for a loop, too, when I got that call. Honestly, I just could *not* believe it. But, I did it. You can, too. Really. The best of luck to you.

      about 4 years ago