• GregP_WN's Avatar

    GregP_WN wrote on Luvs's wall

    Welcome to WhatNext, we are sorry for your need to find us, but happy that we can help you. There are a lot of great people here that have already been through what you are facing and are willing to help you get through it too. If you have questions about anything just post them on the Questions Page. Others will chime in with their personal experiences.

    If you need help navigating the site, please contact me, we are happy to assist. We also have active social pages, you may wish to search those out also. Take some time and poke around the site, there is a world of information here that you will find. The more you dig, the more you will find.

    We have an opportunity for you to make your voice heard with our partner Rare Patient Voice (www.rarepatientvoice.com) to be invited to qualify for surveys and phone interviews for projects that apply to you and if you do qualify you will be compensated on a $100 per hour basis. There are pharma companies that would like to hear about your experiences with certain drugs or side effects. Your information might help develop the next generation of drugs.

    Rare Patient Voice will send you an email inviting you to join their panel. If you say no or don't respond to them at all you will not be added to their panel.

    If you say yes be assured your information is only shared with Rare Patient Voice and is treated with the highest degree of confidentiality. If at any time you want to opt-out of receiving invitations to projects you can do so immediately.

    Thank you for joining us, if you have questions please contact us.
    Greg_P
    5X Survivor
    ACS Voice of Hope

  • Luvs' Avatar

    Luvs shared an experience

    Celebration (Day one of Stem Cell Transplant ): I’m now 6 months Post Stem Cell still weekly blood tests and doctors appointment

  • Luvs' Avatar

    Luvs shared an experience

    Side Effects (Diarrhea): Chemo brain, cramps in legs, fatigue,

  • Luvs' Avatar

    Luvs shared an experience

    Drug or Chemo Therapy (Chemotherapy): Chemo drugs-chop/ice/beam and Melphalan

  • Luvs' Avatar

    Luvs shared an experience

    Procedure or Surgery (Surgery): 2 lymph nodes removed for biopsy, Bone marrow biopsy

    1 Comment
    • BobJones' Avatar
      BobJones

      I am glad this procedure went well for you. I am thinking of you and wishing you the best possible outcome in your journey.

      2 months ago
  • Luvs' Avatar

    Luvs started following

    User: GregP_WN