• hlrhea's Avatar

    hlrhea wrote on Lux's wall

    Hi, Lux! My name is Heidi Rhea and I am a 7 1/2 year survivor of of intrahepatic Cholangiocarcinoma. The Cholangiocarcinoma Foundation is an excellent resource for us along with the Cholangiocarcinoma Warriors Facebook page. The FB page will put you in touch with others who have been there and done that and can give you so much help, insight, support, and love. The Foundation also has a yearly conference that is incredible and is for patients, caretakers, doctors, and researchers. You learn so much about upcoming treatments and trials and meet and bond with so many C C Warriors. I know reading about this cancer is very scary, but be positive and never give up hope!!

  • GregP_WN's Avatar

    GregP_WN wrote on Lux's wall

    Hello and welcome, we are sorry for your diagnosis, but we are happy to have you with us. Please feel free to join in the conversations. Here is a link to our cancer dx page, Take a look at it to get you started on some information. You will notice at the left side of that page a listing of most types of cancer. You can scroll down to find your diagnosis. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started with the help you need right now.

    https://www.whatnext.com/conditions/cancer/

    If you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the database to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

    Thanks for being with us and let me know if I can help you find any information on the site.

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    Watch Our Welcome Video=>>https://youtu.be/Y5QZZsC-H38

    GregP 3X Survivor
    WhatNext Community Mgr

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    Lux started following

    User: GregP_WN