• Lynne-I-Am's Avatar

    Lynne-I-Am wrote on Cryssie's wall

    Hi Cryssie, welcome to the WhatNext site. I found the site in 2013 when I was diagnosed with later stage ovarian cancer at age 66. Through some research I realized I needed a good gynecologist oncologist to treat me. Because there were none of these specialists in my small town we traveled hours away to get the expertise these specialists provide. They are the doctors that have the additional training and experience to treat ovarian cancer patients. Once I had my medical team, I needed to connect to other survivors and find out more about the journey ahead. From the beginning , I received information and advice from the very supportive WhatNext Community. There are many useful blogs and videos on the site along with numerous survivors and caregivers to help answer any of your questions.

    I pass along some things to you I have learned that you may pass them onto your loved one. . The treatments for this disease are difficult, but they are DOABLE. Everyone is afraid when they are diagnosed but when you “ take things one day at a time”, the journey is easier. There will be good days and down days. I want you to know that sometimes the most important thing a caregiver can do is to just be there. Listen. The emotional support from family and friends means everything. I also want to tell you , that today, more than yesterday, there is more hope for ovarian cancer survivors and more weapons in the pipeline for the tomorrows, to fight this disease. I encourage you and your loved one to keep reaching out. I wish the both of you better days ahead and I am here to talk anytime on my wall.

    2 Comments
    • Cryssie's Avatar
      Cryssie

      Thank you for sharing and what an inspirational story. I’ll definitely have a look at your wall. You’re a hero and God has been kind to you xxx

      22 days ago
    • willie's Avatar
      willie

      well-said!!

      22 days ago
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    Lynne-I-Am started following

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    Lynne-I-Am wrote on kalindria's wall

    So, hi there lady. Glad you are feeling ok. What a dose of endorphins it must have been to see the grandkids. Always wonderful to be surrounded with family. I have been good. Getting ready to possibly be without electricity for two to five days because of the red flag warnings being issued by the weather service for Wed. And Thurs. due to very high winds. PG&E shuts off the power to some areas in California now when red flag warnings are issued. I received a notice yesterday that my address is among those that may lose power. So, doing all my washing today, buying some dry ice for the freezer. Thank goodness my fridge is low on food. Since the fires last year it’s a new reality that we live with . Certainly you Washington residents do not have to worry about this happening up there. Thank goodness,

    Will be attending a cancer walk and awareness event this weekend unless canceled because of the power outages. Hopefully this is not the case. Wishing both of you well. BIG CONGRATES on 6 year survival too.

    2 Comments
    • kalindria's Avatar
      kalindria

      Fire season in California is scary! Stay safe!! Both my girls are in areas that may have the power cut to minimize the damage. It's a good idea but so disruptive.

      We have a lot of fires up here too - most are not in highly populated areas but they're just as devastating. And some of them do threaten homes, etc. There are just too many people now living in what were once rural areas and difficult for fire services to access. People don't think about that when purchasing a home in the back country. Or they didn't used to - things may be changing.

      Your cancer walk sounds great. Hope it's not cancelled.

      I attended several sessions of my writers' conference last weekend and thoroughly enjoyed myself. I wasn't feeling well, so stayed home for some of it but definitely got my money's worth and am feeling re-inspired.

      Only one more infusion for me and then I have a CT scan and a visit with my oncologist to talk about next steps. That happens on Halloween! I hope there are some good options and not just more of the same. We'll see.

      And thank you for the congratulations. I'll be back next year for more. ;-)

      about 1 month ago
    • Lynne-I-Am's Avatar
      Lynne-I-Am

      Write, write, write. Perhaps you will have several stories or a book when Spring comes. Keeping fingers crossed your CT scan is good news. The Cancer Walk did happen and because I overdid a bit, I was pooped when I came home. Did have the power outage for 41 hours, but survived that also. Keep me updated. As always, wishing you better days ahead.

      about 1 month ago
  • Lynne-I-Am's Avatar

    Lynne-I-Am wrote on babstravel's wall

    I am sorry to read about another recurrence. There are many weapons in the arsenal toda with more in the pipeline. I hope any future treatment is successful or at the very least keeps your condition stable. Always wishing you better days.