• Lynne-I-Am's Avatar

    Lynne-I-Am wrote on BuckeyeShelby's wall

    Hi BuckeyeShelby, I do not come as frequently to the site since Greg’s passing . I still think of all the WhatNexters and all of their support through the years. I just wanted an update on how you are doing.,especially through these isolating times.

    5 Comments
    • Lynne-I-Am's Avatar
      Lynne-I-Am

      Rough days for sure Shelby. Sounds like you are over the worst of it , thank goodness, and into recovery. I am sending you oodles of support and tons of wishes that your days at that skilled nursing facility pass quickly and you are once again back home.

      3 months ago
    • BuckeyeShelby's Avatar
      BuckeyeShelby

      Thanks, guys. I'm just bored. Very little pain. I've got lots of Kindle books on my tablet and just downloaded a couple free TV/movie apps to try to help pass the time. I have a TV in my room, but it's kinda annoying. I appreciate all the good wishes.

      3 months ago
    • Bug's Avatar
      Bug

      BuckeyeShelby, I stopped by to check in on you and saw your post. Good grief. What a time you've had of it. How are you doing these days? Is your foot improving? And how about the wound on your stomach area? Hang in there, friend.

      3 months ago
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    Lynne-I-Am started following

    Question: Pap smear

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    Lynne-I-Am shared an experience

    Milestones: Today, March 4th 2021, I celebrated my seven year cancerversary. Seven years ago was my final chemo treatment. The staff at the cancer clinic , I, and my husband celebrated with a big cake and was presented with a certificate of completion. I know how blessed I am to still be NED all these years later.

    2 Comments
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    Lynne-I-Am wrote on ezmonday's wall

    Hi there. Wanted to give you a little info. A great site for any ovarian cancer survivor is ocrahope.org. I have been to two of their annual conferences , before Covid, Nothing lifts a survivor’s spirits like one of these conferences. I highly recommend it . The organization is made up of ovarian cancer survivors , for ovarian cancer survivors. The organization also petitions congress for more research funding to fight this crappy disease as well as raises its own funding for research. Theses are a great group of ladies and the information on the site is insightful and current. Also there are several Sites on Facebook exclusively for ovarian cancer survivors .

  • Lynne-I-Am's Avatar

    Lynne-I-Am wrote on ezmonday's wall

    Hi ezmonday, your post came up in my e-mails. I am alerted when a member of WhatNext asks a question concerning ovarian cancer. I was genetically tested and I am BRCA negative. They did find a mutated gene in my makeup but at this time , do not know what this specific gene is responsible for. I was diagnosed IIIC in 2013 at age 66,, went into remission March 4th, 2014 after chemo, surgery and more chemo and have been in remission since then. Today, many doctors place their ovarian cancer survivors on a maintenance medication following chemo. This was not widely done in 2013, so have not been on maintenance . All of us are individuals and respond so differently to this disease. I am active on several ovarian cancer sites and from survivor’s posts can tell you that there are many ladies surviving years after diagnosis with later stage ovarian cancer who have had no recurrence and still others who have had a recurrence then become NED with no further recurrences. There is unfortunately too many who never reach NED or have reached it several times only to recur. This is the terrible mystery of cancer. Keep in close contact with your doctor and listen to your body. During the past seven years I have had two false alarms, thinking I had a recurrence but luckily no evidence of disease found. I know that the shadow of this disease always follows you, in differing degrees for all survivors. From the time I was diagnosed I have always looked forward . Two pieces of encouragement that were said to me when I first came to WhatNext, 1. Take things one day at a time, and 2. No one is stamped with an expiration date. Wishing you always better days ahead and here to talk anytime.

    1 Comment
    • ezmonday's Avatar
      ezmonday

      Thanks Lynne for the info. My oncologist has said if we get clear CT scans he will be putting me on oral chemo drugs which I will be on the rest of my life. Thank you for such a positive outlook. Wishing you continued health.

      4 months ago
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    Lynne-I-Am started following

    Question: UPDATE #4 (?)