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    Lynne-I-Am wrote on shelkat's wall

    Hi lady. I was thinking of you today. Let me know how your results go. I am keeping fingers, toes and Eyes crossed for good results.

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    Lynne-I-Am wrote on shelkat's wall

    I understand the scanxiety , even eight years out I still get anxious about yearly pelvic exam and every six month CA125 draws. I too was depressed and took a mild anti anxiety medication while in treatment. Everyone of us, all the survivors I have talked to, feel some anxiety when testing or exam times roll around. If you read my medical chart it will say my ovarian cancer is undifferentiated, meaning they could not categorize my specific type even testing the fluid drained for my ascites. My Gyn /Onc thinks I was probably high grade epithelial serous.
    I congratulate you on reaching out for additional support and information. Both these moves make us stronger. I wish I could do something to ease your anxiety I know that talking definitely helps. I will be thinking of you next Friday and hoping for a good report.

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    • shelkat's Avatar
      shelkat

      Hi Lynne, appreciate your reply. Meeting you makes me feel better and gives me hope. I have good days and bad days. Today, I woke up feeling much better :) Let's stay in touch!

      9 days ago
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    Lynne-I-Am wrote on shelkat's wall

    Sorry, should not have capitalized site- ocrahope.org

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    Lynne-I-Am wrote on shelkat's wall

    Hi there shelkat,
    Welcome to the WhatNext site. I have been on WhatNext for eight years since being diagnosed with IIIC ovarian cancer in 2013. Unfortunately , WhatNext has suffered from having a good overseer for several months now . The question page ,for example, does not register current questions . There is still a wealth of information from various blogs and videos . One video in particular was made by a fellow ovarian cancer survivor, kalindria- I recommend it. You can still talk with fellow survivors on their walls if they are still active on the site.
    I know much of what you are goinfpg through. I was 66 when diagnosed. No one can prepare you for hearing “ you have cancer “. Like you ,I had debunking surgery and chemo. I have been NED now since my last chemo. I have talked to and personally met many ovarian cancer survivors over the years. There have been many new treatments for this xxx disease and increased reason to hope for improved outcomes going forward. I recommend OCRA hope.org for continued support and other ovarian cancer support groups on Facebook. I am happy to talk to you anytime on my Wal. Wishing you better days ahead.

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    • shelkat's Avatar
      shelkat

      Hi Lynne, thanks for reaching out and sharing your story. I'm low grade and not NED. Are you low or high grade? I will check out the website. I'm pretty depressed. CT scan next Friday. Scanxiety is at an all time high.

      9 days ago
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    Lynne-I-Am wrote on LiveWithCancer's wall

    Hi lady. Like you I have not been receiving regular WhatNe t newsletter. Recently, after several months received the newsletter along with notification of an Ovarian cancer survivor coming to the site. Everything has deteriorated since Greg’s death. Seems nothing was put in place to carry the site forward as backup should Greg , for any reason, was unable to carry on. I know Greg and his family would be very saddened to see the state the site is in today. However, all the things Greg was so smart to put in place, the videos, blogs, and general information about various cancers are still part of WhatNext and hopefully will be useful to any survivor who visits the site. The question page however, remains a mess. I think of you , and all the other wonderful contributors of the WhatNext community frequently and are so grateful to all of you for the support I received these past eight years. Perfectly understand your need to step away and always wishing you the best.

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