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    Lynne-I-Am started following

    Question: Acceptance

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    Lynne-I-Am wrote on kalindria's wall

    Hi there. So, your going to start off the New Year with a knee replacement? I think I remember you talking about a bum knee when we had lunch. When is the surgery?

    3 Comments
    • kalindria's Avatar
      kalindria

      If all goes according to plan, surgery is set for Feb. 4. It's custom-fitted to me. They actually did a CT scan of my knee so they can make the 3D model and then the actual replacement knee.

      1 day ago
    • Lynne-I-Am's Avatar
      Lynne-I-Am

      Wow, sounds like the new and improved you in the New Year. Amazing what they are able to do. Before I forget I want to wish you and loved ones a wonderful Christmas. Stay safe and warm this winter . My husband is kidnapping me , our dogs and the RV and traveling to BullHead City Arizona for a month starting Jan. 15th. You know I will be thinking of you nect Feb. 4th while I am shaking the sand out of my shoes. Take care.

      1 day ago
    • kalindria's Avatar
      kalindria

      I head out to California to be with my daughters and their families next week for Christmas. It will be great to see them all.

      Have a lovely time in Arizona! And MERRY CHRISTMAS to you both!!

      1 day ago
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    Question: Blood Transfusion

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    Lynne-I-Am wrote on Cedar's wall

    Hi Cedar, welcome to WhatNext. I am sorry you have had a recurrence. With any of the almost thirty different types of ovarian cancers, this is too often the case. However, I do want to congratulate you on your fifteen year survivorship and remission from this crappy disease. From reading your experiences, it looks like you are keeping up on all the latest treatments including clinical trials and targeted therapy. Are you in a clinical trial at present? I have currently been in remission for five years from later stage undifferentiated ( thought to be serous epithelial ) ovarian cancer. I came to WhatNext shortly after being diagnosed looking for support and information and found both. WhatNext is a community of caregivers and survivors with all types of cancers. Additionally, I belong to several Ovarian only survivor cancer sites. I recommend another site for you too, on Facebook, Sisterhood of Ovarian Cancer Survivors. It is a closed group, for women only. Just ask to join. There will be numerous women there with your particular type of ovarian cancer and some may mirror your experience. My homebase however is WhatNext. This site is great for overall support and becoming better with the addition of blogs and videos. You may want to view my friend kalindria’s video. She is a five year survivor, and talks about her experiences with recurrence. She also lives up there in Washington State. Also, There is another site you may be interested in- OCRAhope.org. This site is also very informative and keeps up to date on the latest research in the ovarian survivor community. They have a conference every year attended by hundreds of ovarian cancer survivors . The conference for 2019 is being held in your neck of the woods and I can tell you that as someone who attended last years conference, it is a great experience. The support is overwhelming, and the research is hopeful. so, reach out to the community with any questions you have, visit the pin board for a smile or uplifting post and talk with any of us on our walls. We are all here to support you, and each other.

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    Lynne-I-Am wrote on Maryme's wall

    Hi Maryme, welcome to the site. I am a 72 year old ovarian cancer survivor who had that “ oh no “ moment in 2013 at the age of 66. I know this is a scary time. I urge you to find a good gynecologist onchologist for your medical care and if possible get two opinions for your medical care going forward. I lived in a small city and there were no gyn/ onc here so I traveled over two hours away for my surgery and chemo treatments. Memorial Sloan Kettering in New York has a great national ranking for example and stays on the cusp of the newest advancements in cancer care. I can tell you that there are no easy treatments, but I can also say the treatments are DOABLE. All the caregivers and survivors on this site are here to help support you. Please ask any questions you have and look over the information provided. I would be happy to talk to you anytime on my wall.

    3 Comments
    • Maryme's Avatar
      Maryme

      Ty for your positivity. I go for an interview at sloan Monday

      3 days ago
    • Lynne-I-Am's Avatar
      Lynne-I-Am

      When you go for your appointment, have your questions for the doctor written down and please, do not go to the appointment alone if at all possible. That first appointment with your gyn/ onc is usually an emotional one for a survivor and it helps to have a second set of ears to hear what the doctor is saying and also for the additional emotional support. Please keep in touch and let us know how you are doing. We are all here for you.

      2 days ago
    • kalindria's Avatar
      kalindria

      Lynne's given you some great advice. Remember, the doctors and other medical professionals are there for YOU so take your time, don't get flustered and ask all your questions. Like Lynne, I had a list for most early appointments to make sure I got them all answered. I also took my boyfriend of 20 years along as he had questions and a different perspective than mine. As my primary caregiver, there were things he wanted to know that I never even considered. Plus he kept me calm and focused.

      I hope your interview goes well and remember, stage IV is not a death sentence. Chemo is totally doable (get a chest port), and most important, we are here for you.

      1 day ago