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    lynneann123 shared an experience

    Other Care (Home care): The home-health care I get right now is a joke. I have a 70 year old nurse who comes once a week, checks my temp, o2 level & blood pressure, the rest of the time we just yak.
    Supposed to have had pt/ot, social services, help with my emotional state, but yet to have these, either through my h/c providers or the home health agency. I am completely on my own, & it really, really sucks

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    • DaveWaz's Avatar
      DaveWaz

      That must be so frustrating for you. If you click on Resources in the blue bar above, you might find some helpful organizations and groups near you. Also, that number for the ACS that I provided to you should also be helpful with this. Just let them know what you need and they'll tell you why they can do to help you.

      over 4 years ago
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    lynneann123 shared an experience

    Decision Point: Since the tumor has shrunk more than 1/2, I am going through the 2nd round of chemo, however, if there is no more change, I have decided not to go through it again.
    My mother died from a blockage that occurred after chemo in 2000, a blood clot disintegrated her main artery when it was set loose from her arm. I'm not willing to go through that kind of experience.

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    lynneann123 shared an experience

    Loss (Relationship ): I've become 'removed' from my only sibling, my sister. I get the feeling that her motives for helping me have moved from panic to 'What about me, I am the 'saver' here'. She gets sullen when my health-care team pays more attention to me than her. She doesn't want to drive me to chemo, unless she doesn't have to stay for the duration, and she'd rather use my car than borrow her husband's. I live on a fixed income & am very careful about using my fuel economically, she is not.
    I hate asking her to help with anything, because there is always that uncomfortable hesitation & plastic smile & answer.

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    • DaveWaz's Avatar
      DaveWaz

      I'm sorry to hear about your situation with your sister. If you need rides, the American Cancer Society has a great program that helps with transportation and gas cards for treatment. You can call the ACS[phone number redacted] and they will be happy to tell you what is available in your area.

      over 4 years ago
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    lynneann123 shared an experience

    Radiation (External radiation ): My whole post just got wiped out by google chrome. Have to come back later.

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    lynneann123 shared an experience

    Drug or Chemo Therapy (Chemotherapy and radiation combined): Hate the hair loss, loss of taste, exhaustion. I am an active 56 yr old, was involved in volunteering, in the process of obtaining my MA in NPM, volunteered with 2 agencies, and until my brother died in 2010 from end-stage renal disease, helped him with laundry, transportation & shopping

    I had a he** of a time recovering, spent 3 months between hosp. & 'nursing' homes, and got extremely frustrated w. lack of care & control (on my part)

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    User: GregP_WN