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    lynniepoo wrote on Bjack's wall

    Welcome to What Next -the Multiple Myeloma section which is our little corner of the world where we can ask questions, get answers, vent, socialize and just talk to others going through the same things that you are. I have been on this site for several years and found it to be helpful and very supportive. MM is not well known so few people understand what we are dealing with.
    So we are here to give you ideas and support. So if you have questions ask away, one of us is sure to be able to help!!

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    lynniepoo wrote on Rolltidelynne's wall

    Hi Lynne
    I have been very lax when it comes to keeping up with this site. Just thought I would check on you and see how you are doing. I hope you are doing ok and that those comments you had to put up with have stopped. Are you still on Revlamid? So hard to deal with all the side issues with this disease. How did you know you had neutropenia? I fully understand your back issues--I have gone from 5'6" to 5'3" since my back issues started from compression fractures.
    I have been doing cardiac rehab since Jan. But limited due to my back problems. Am going to start PT next week as my balance is so bad as my right leg is shorter than left due to my broken leg. I am so afraid of falling again and breaking something else as my bones are so weak. After my fall my Mspike was up and down but now has gone back down to .3 where it was before I fell. I feel ok but have good days and bad days. Going to see a pain specialist as I am so afraid of taking too much morphine.
    Well I hope you are doing well and things have improved. Besides the "e" on the end of our name we always had so much in common. Take care!
    Lynne Maroun

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      Rolltidelynne

      OH!! Are you ok now?!?! I'm sorry I hadn't been on n checked in a while!!! But I'm back now!!!

      6 months ago
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    lynniepoo wrote on Rolltidelynne's wall

    Hi Lynne!!
    I am back!! Haven't been on what next for awhile but am doing better now. I had my aortic valve replacement via TAVR on Dec 3 and was home on Dec 7th. Doing fine so far. My team of Drs was fantastic and they so far have been pleased with my progress. My oncologist worked closely with them as well so I felt like everyone was on board!! So now after the holidays my project is to find Relief for the pain in my back. Have never been sent to a pain specialist so am going to try to get my Drs to make a referral for that. Have you used one? I am just afraid to keep using more and more morphine. My back issues still keep me pretty inactive which really bothers me. So just looking for advise I guess on pain specialists.
    Hope you are doing fine.

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    lynniepoo wrote on bigmike05's wall

    Hi !
    I've been off this site for awhile due to unrelated Heath issues but came across your post. I am considering going to a pain specialist as my 5 compression fractures cause me considerable pain which morphine dulls but does not do away with. I am afraid I will just end up taking more and more. I moved and have changed oncologists and the new one seems more inclined to let a pain specialist deal with the pain. What has been your level of pain and how has the specialist dealt with it? Do you like your treatment from this dr? Am just trying to decide if I need ANOTHER Doctor.

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      bigmike05

      6I have a supportive care Dr for meds and Pain management for procedures both are great and are quick to help me out. They are both at MD Anderson where I do all my treatment and all so the just deal with cancer patients and care and understand.

      about 1 year ago