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    PennieEckard wrote on macbarbie's wall

    Hello macbarbie. I read your journey. I am so sorry. How are you doing now? We would love to hear from you.

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    macbarbie shared an experience

    Side Effects: Too many to mention....Cancer becomes you life when it is chronic. All your decisions are based on your treatment calendar and when you MIGHT feel ok.

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    macbarbie shared an experience

    Clinical Trial: I receive my treatments at the Cancer Center of Santa Barbara, and the Sansum Clinic in Santa Barbara. I have visited City of Hope and Stanford Medical Center. No one had anything to offer beyond what I was already receiving in Santa Barbara. Says wonderful things about my oncologist that he is at the top of his game, but frustrating that I don't have other options. Tested for both EGFR and ALK....negative on both.

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    macbarbie shared an experience

    Radiation: I have had 3 rounds of radiation. First to my chest/lymph nodes. then whole brain radiation where your head is bolted down by a mesh mask, then to my spine...again with a mask. But without it I would be dead. You hate it but you know you want to survive so you calm yourself down to survive it. I prayed several "Hail Mary's" through radiation.

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    macbarbie shared an experience

    Drug or Chemo Therapy

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    macbarbie shared an experience

    Drug or Chemo Therapy