• macfightsback's Avatar

    macfightsback wrote on Ninnie's wall

    All my hair fell out too! Most of it came back. My eyelashes and eyebrows are very thin compared to before chemo. Most of the annoying hair under my arms and on my legs is gone. Less hair to shave. Hooray!

  • macfightsback's Avatar

    macfightsback wrote on Ninnie's wall

    Welcome Ninnie,
    I was diagnosed stage 3 C in July 2015. I had Carboplatin and Taxol as my Frontline (first) chemo. I had neuropathy in my feet and hands with my initial chemo. All of that went away except for mild neuropathy in my left foot. It is numb, not usually painful and does not interfere with my walking. I hope all of your neuropathy goes away. Unfortunately I required blood transfusions 4 times too with initial chemo. My Oncologist said some people's bone marrow is more sensitive than others. Some people actually work through chemo. I have never been able to do that. You are so blessed to have a loving dedicated caregiver. I hope you have more good days than not so good days. Feel free to ask any questions. We are here for you.

  • CharMyrdal's Avatar

    CharMyrdal wrote on macfightsback's wall

    Hi,
    I have the same diagnosis as you. Could you please tell me what your initial surgery was like?

    1 Comment
    • macfightsback's Avatar
      macfightsback

      Are you a candidate for HIPEC? That is when they instill chemotherapy directly into the abdominal cavity during surgery. It was not available when I had my surgery in 2015. I wish it had been. I don't have any information about if people do better with HIPEC but it would be worth asking your surgeon about before surgery. I was in the hospital for 8 days. I had a Morphine drip a few days after surgery. I was momentarilt sore when I moved around. They encouraged me to get up and walk the halls. The hospital food was not very good so I did not eat very well. I had a few well managed complications. Most people do not have complications. I had to wait before I could drive after surgery, about 4-6 weeks. Then I had chemo. Surgery is different for everyone. Be sure to ask your surgeon any questions you may have. Surgeons sometimes have different procedures/protocols. So my experience may differ from yours. I wish you well.

      about 1 month ago
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    macfightsback started following

  • macfightsback's Avatar

    macfightsback wrote on Vaccarob's wall

    Welcome Vaccarob,
    Finding out someone you care about has Stage IV Ovarian Cancer is overwhelming, shocking and frightening. I am glad you have joined us. I was diagnosed stage 3C in 2015. It has been a struggle but I can honestly say I have more good days than bad days. Sites like What Next are great sources of knowledge and support. I urge you to consider suggesting this site to your loved one. Since we all have screen names, you could both choose to remain anonymous and both be on this site. You will see all sorts of questions on this site and answers. You can pose your own question or gain info from other questions. Feel free to ask any questions. We are here for you.

  • Lynne-I-Am's Avatar

    Lynne-I-Am wrote on macfightsback's wall

    Hey there, how are you doing?

    2 Comments
    • macfightsback's Avatar
      macfightsback

      Hi Lynne-I-Am,

      I have had 3 rounds of Doxil, Avastin and Carboplatin. I received 2 units of blood 13 days ago, a day after I received chemo. My Hemoglobin is still very low at 7.3 today. My oncologist says I have lost my bone marrow reserve with all the chemo I have received since 2015. So I am waiting to receive 2 units of blood again today and when I get chemo in 2 weeks we will recheck my labs and adjust my chemo dose as needed. This is a little scary since usually when I receive a blood transfusion, my hemoglobin stabilizes for around a month at least. Que Sera, Sera. I just applied for Social Security Disability. It takes so long to get approved. Working as a registered nurse again, even part time seems a long way down the road. I will be getting a repeat CT at some point soon. I will bring my sister with me for those results. She has not met my Oncologist yet. She is my Health Care Power of Attorney so I feel she needs to meet him so he will not be a total stranger, if something expected happens. I still have not given up being an Ambassador for Ovarian Cancer although it would probably be unbranded since I am no longer on Zejula. (They discontinue it once you reoccur.). How are you? Sending Love

      2 months ago
    • Lynne-I-Am's Avatar
      Lynne-I-Am

      Well, I am sure Snow will welcome you when you are stronger and over these challenging times. I attended the OCRA Conference in Seattle and received the latest news on fighting this xxx disease .A good dose of support and positivity enveloped all who attended. So far Immunotherapy, although showing great promise with some lung and blood cancers is not as yet proving to be particularly effective against ovarian cancers but the doctors at the conference all said that it is early days yet and remain hopeful. There are several clinical trials currently taking place . Next year the conference will be back in Washington DC. They are trying to get San Antonio , Texas for the conference in 2021 and I am hoping to attend that one. The 24th of August is my birthday. I will be celebrating it by participating in a cancer walk that day and hopefully spreading information about ovarian cancer and its symptoms. Very good idea about introducing your sister to your oncologist. and I can certainly understand that all of this is scary. Sending you oodles of support lady . I will keep checking in and keep wishing you better days ahead.

      2 months ago