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    macfightsback wrote on kalindria's wall

    Hi Kalindria,
    Thanks for the videos. I could relate to much of what you said. I was diagnosed stage 3 C in July 2015. I am probably beginning my 2nd reoccurence. Last year I got chemo for mets to 2 inoperable lymph nodes for my first reoccurence. I will get a CT guided needle biopsy of my right lung next week to determine what is happening. How are you? Did you decide to go back to work? I did go back to my full-time job as an ICU nurse when I finished initial surgury and chemo. After working 1 year, I retired. My job was too stressful to do full time. I returned part time 4 months later. Had my first reoccurence January 2018. (Quit, I can not work during chemo.). I am currently still on a PARP inhibitor until we sort out the 2 pulmonary nodules in my right lung. It took a while to find the right dose for me. Right now I do not want to go back to work. I want to continue to reach out and support people with Ovarian Cancer. I discovered this site on a Facebook advertisement last year during my first reoccurence. I love it! It is my favorite Ovarian Cancer site, I have been on a few. I hope you are doing well. You are working on year 6! Congratulations!

    1 Comment
    • kalindria's Avatar
      kalindria

      Hi, Mac! Great to hear from you.

      I'm good. I just had a knee replacement so I've been off chemo since October and loving that! I know I'll probably have to go back on it in the next few months but I'll handle that when it happens. When I was first diagnosed, I always thought I'd go back to work but I never did. I am enjoying my time not working and luckily, my lovely boyfriend makes a good salary and also provides my health insurance. He likes having me at home too and it's all less stress on me.

      I'm really glad you liked the videos and hope they helped. I had no idea what I was facing when I first started treatment. Wish I'd been able to watch videos like these.

      I hope they get you all sorted out and that your pulmonary nodules are no big deal. I have some nodules low in my abdomen that are inoperable so I feel for you. Last time my oncologist checked them, they were so small she couldn't palpate them and my CA 125 was normal.

      Year six. That's amazing. I never thought I'd still be alive when I first heard the cancer news. Medical advances in cancer care are marvelous. I bet you'll be following in my footsteps too. Please let me know how your biopsy goes.

      about 8 hours ago
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    macfightsback wrote on AMatthews's wall

    Welcome AMatthews,
    It sounds like you are considering a second opinion after you had a reoccurence. A second opinion is always a good idea. You may want to check out a Comprehensive Cancer Center since they often have more resources and options. Other care? Does that mean Palliative Care to help with your symptoms. If it does, I highly recommend it. I had Palliative Care in 2015 and it was very helpful. Palliative Care does not mean you are at the end of life. It is very scary having a reoccurence. I had one last year and now it's happening again. I hope you have people around you that can help (family, friends, neighbors, co-workers, church members ect .). Don't hesitate to ask for help or accept it. Feel free to ask any questions. We are here for you.

  • macfightsback's Avatar

    macfightsback asked a questionOvarian and Fallopian Tube Cancer

    Clinical Trials/Second Opinions

    4 answers
    • LiveWithCancer's Avatar
      LiveWithCancer

      Hi macfightsback. I'm sorry to read that you're facing a third bout with your cancer. I don't have answers to any questions, but I am hoping and praying for you!

      2 days ago
    • Skyemberr's Avatar
      Skyemberr

      I had a needle biopsy to my lung that I was supposed to be twilighted for. The twilight didn't work and I was screaming the F word at the top of my lungs because the idiot who did the biopsy did it while I was awake and still talking to him. After I screamed, then he yelled at the nurse to push more drugs, but the damage was done.

      I will never do twilight again unless I have no other choices. I want general anesthesia. A biopsy doesn't have to be traumatic. That biopsy hurt a lot. I had some bleeding in my lung afterwards, which was a little scary and then blood was coming out of my mouth and nose. Some people don't respond well to twilight and I'm one of them.

      I promised myself that if anyone asked about lung needle biopsies here I would advocate for general anesthesia after what I went through.

      Good luck in your fight. I hope you beat the heck out of Ovarian Cancer! We are here for you!

      2 days ago
    • Kylerem's Avatar
      Kylerem

      Hi. I have not had a needle biopsy of the lungs but have had 3 procedures by interventional radiology. The first was the port placement and I was awake. The other two were placement and retrieval of an IVC filter due to blood clots. I asked them to please give me enough sedative to keep me asleep during the procedures and didn’t feel a thing. Good luck. Praying for you

      2 days ago
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    macfightsback wrote on Charrison's wall

    Welcome Charrison,
    I was diagnosed stage 3 C in July 2015. I was in shock for months after hearing my diagnosis. It is very overwhelming. I was terrified of chemo and did not worry much about my surgery. The debulking surgery was tough . I was in the hospital one week. I developed a superficial clot in my right arm post-op and had to give myself Lovenox injections for a few months (I sure was a wimp about that). I had to pack the lower part of my incision for weeks to help it heal. I got readmitted after being home 2 days for fluid overload and required a thoracentesis for shortness of breath. I really underestimated the surgury.

    Chemo was tough too. I would like to share with you what worked for me. I had many of the same side effects you are experiencing. Nausea was never a problem for me. I received 2 nausea meds during each chemo session. I also had nausea medicine at home. They gave me Compazine but Zantac works quite well too. (We usually gave Zantac for nausea in ICU)

    . I did have occasional severe acid reflux about the same time the diarrhea would hit me after chemo. However before diarrhea came constipation. The medications we are given to prevent nausea slow down our entire GI tract. That is one cause of constipation. Unfortunately I have lots of experience. Drink lots of water, get some exercise (walking is good). Exercise stimulates your bowels. Meds:. I am still on a Max dose of Colace (300 mg everyday). It is a stool softener and helps prevent constipation not treat it. All my docs recommend Miralax as a laxative but sometimes more is required. My palliative care nurse suggested a Dulcolax (that brand only) suppository which is supposed to work soon after it is given or Senocot an old constipation med which will work but you will feel some cramping because it stimulates your bowel, it may take a few days to work. Magnesium Citrate is given as a bowel prep for procedures like colonoscopys It will work but should only be used as a last resort and rarely. It is not meant as a regular laxative. You said severe constipation. If you are badly backed up, you may need an enema to clean you out. Then take a stool softener daily and Miralax as needed ( it pulls water into your bowel and makes stool easier to pass) and is much gentler than Senocot. Not to be gross but if you are passing stool that is hard (like rocks) you need to work on drinking more fluids and adding some fiber to your diet as you can tolerate it. ( I remember how hard it can be to eat during chemo, everything tasted bland, and of course nausea does not help either, so fiber may need to be part of a long term plan). I hope this helps your constipation.

    Neuropathy yes, I still have some mild neuropathy in my left foot. No pain, no trouble walking. I call it my " souvenir" from Taxol and Carboplatin. During chemo my fingers and toes got numb. By the time of the next treatment, the symptoms were usually gone. Right before my last treatment in 2015, I still had mild neuropathy in my feet but we decided to do the treatment anyway since it was mild. The neuropathy in my right foot went away. Some people have neuropathy worse than others. There are medications which can help like Gabapentin. Make sure you let your Oncologist know so they can help you out.

    Extreme fatigue and severe anemia I have had from chemo in 2015 and 2018. My bone marrow does not like chemo. I received 4 blood transfusions in 2015 and 5 in 2018. Part of your fatigue can be from anemia. What is your hemoglobin? My Oncologist ordered blood transfusions if my hemoglobin was less than 8 and I was having symptoms, which I always did. Shortness of breath and exhaustion going from my bedroom to the bathroom was common. Hearing my heartbeat in my head around the clock in 2015 was annoying and stressful. Just taking out the trash got to be impossible from fatigue and I had to time my grocery runs at the smaller stores (not Walmart) to just before my next treatment or a couple days after I received a blood transfusion. Anemia is not the only cause of fatigue, it just makes it worse. You need to take it easy. Reach out to anyone who can help with household/yard chores (family, neighbors, friends, coworkers, church members ect.,). If you need a driver to get to treatments , The American Cancer Society has a free program which can help. You can ask your Oncologist about it or reach out directly to them.

    Finally, mouth sores. There is a mouthwash you can ask your Oncologist to order (you will need to get a prescription) that will clear your mouth sores up. Then there is a preventative mouthwash you can make yourself. It is baking soda (1/4 tsp), salt (1/8 tsp) and warm water (1 cup) swished around 3-4 times a day. Occasionally I would gargle with it if I felt my throat getting sore. It worked.

    I remember how hard going through chemo was. On top of all those side effects was the isolation since it is recommended you avoid crowds since your immune system is weakened from chemo. The good news is hopefully you will be done with chemo in a few months and you can move on. Please be sure to tell your Oncologist all of the side effects you are experiencing. If he can not help, he can order a Palliative Care Consult could be helpful for managing your side effects. ( Palliative Care is not necessarily just for end of life). They helped me with constipation in 2015. Another consideration if you are not getting relief from symptoms is for the Oncologist to lower your dose of chemo to something you can tolerate better or to take a short chemo vacation (mine was an extra week off from chemo when my labs were bad). I hope this is helpful. I wish you more good days than not so good days.

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    macfightsback wrote on Lpoet1111's wall

    Welcome Lpoet1111,.
    Much can happen in 4 years. It would be helpful to learn more about your cancer journey so far. For example, how many reoccurrences, treatments, second opinions, how your general health is right now, what is going on with your cancer at the moment to name a few. Of course, where in Mexico are you considering treatment? It is the doctors and the safety and efficacy of their treatment which will make a difference . There are great resources here too. Have you been in any clinical trials? There are challenges to traveling to another country to consider. If you would be more specific, we might be able to advise you. I was diagnosed stage 3C and I am probably having a reoccurence myself, the biopsy of a pulmonary nodule later this month will reveal more. I understand wanting to explore all possible options for treatment. There are some slick con artists out there who claim miraculous cures. I hope that is not what is going on in your situation. They prey on us when we are most vulnerable. There are also new treatments, research, and clinical trials that are helping us live longer and with a higher quality of life. I know that is what we all hope for and work toward.
    Wishing you the best.