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    Mamaswagon started following

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    Mamaswagon started following

    Question: chemo port

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    Mamaswagon wrote on lujos's wall

    Thank you for your support. I will be on the identical chemo plan as you. How are you doing I see you have recurrence? I am so sorry. The mastectomy wasnt as bad as I had thought it might be, dont be afraid, they can reconstruct your breast, you however are magnificent and irreplaceable.

  • Mamaswagon's Avatar

    Mamaswagon shared an experience

    Other Care (testing): Week 4, I had a CAT scan, a Bone Scan and a Pap Smear all were negative for any findings of spread of my breast cancer. mestatic breast cancer with Triple Negative Breast Cancer is not a good prognosis, this is good news!

    2 Comments
    • Sparkplug's Avatar
      Sparkplug

      Very good news! Yay

      about 1 year ago
    • MLT's Avatar
      MLT

      Awesome! What kind of treatment are you getting? I should be getting scans in Oct. I have the same diagnosis as you.

      about 1 year ago
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    Mamaswagon shared an experience

    Procedure or Surgery (Implant chemotherapy port): Week 5 after mastectomy I had my Power Port surgically implanted into my left chest. I don't know what I really expected but I'm certain that my expectation was that they were going to put me to sleep. No I was wide awake for the whole thing. They gave me some novicaine and a light sedative. I wanted to sleep through the whole thing and I never went to sleep. I came out of it wide awake, drinking, eating crackers, and was out of recovery in 30 minutes. If you've never had one of these, the procedure is that they cut into your cartoid artery in your neck and feed a catheter down into the main vein of your heart, then the catheter tunnels under your skin to the site where they cut a 5cm pocket under your skin below your clavical and connect the two and stitch you up. The port allow the doctors to give you the chemo without running an IV into your peripheral arm veins every time. They can also give you other meds and do laboratory blood draws from the port also. They have to flush the port every use with saline and heparin to prevent blood clots. If your port is not in use for 4 weeks they have to do a routine flush. If you've never had a saline flush it can cause a horrible metallic taste in your mouth. I have heard from others that sucking on hard candies or mints or smelling essential peppermint or lavender oil helps. Hopefully it works as planned I begin using it for chemo next friday week 7. When they are sure that they no longer need the port they have to do an identical procedure in the reverse to remove it. I'm hoping that they can do that when I have my next reconstruction surgery in the spring probably April or May. They use a port if you have to have a lot of chemo treatments. Most people who only have 3 or 4 don't get a port. I will have 16 chemo treatments. Reusing the veins weekly or bi weekly the chemo burns the veins and they no longer function and the chemo leaks through the veins into the surrounding tissues and causes damage. The biggest concerns are blood clots and infection with the port. They try to position the port where your bra straps, seat belts, and tissue expanders won't touch or rub. We are talking options of inches, your chest it not a football field.

    3 Comments
    • lujos' Avatar
      lujos

      I had a port put in too, and it was a real life saver! Saved my veins, they can take blood from it too, and give chemo. I was super bruised and sore from the insertion, hope you aren’t!

      Good luck with the chemo, I had 4 AC and 12 Taxol.

      about 1 year ago
    • Fuxitol's Avatar
      Fuxitol

      I was under when put it in...awake when taken out. I prefer under! Hearing my skin cut and the feel of tugging is very awkward and odd. The numbing shots hurt like crap. I also heard that the doctor and nurse talk about other employees, which is kind of funny. They talked to me, too, during it. However, having said that, they said medically, you're better off if you don't have to take the anesthesia. Recovery is faster. I still have a reddish, indented mark where the port came out. I'd like to hear from people about how theirs healed. I'm also considering tatooing over it....the mark is visible with any scoop neck shirts, and it's not pretty. Waiting for it to heal some more, first.

      about 1 year ago
    • beachbum5817's Avatar
      beachbum5817

      I had my port put in 3 weeks after my double mastectomy and started chemo the next day. I knew from the time of diagnosis that I was going to need chemo, and I often wonder why it wasn't put in at the same time as the surgery. At least, I was out for it. I had it removed a year and a half later when I had my permanent implants inserted. After 4 years, my scar is hardly noticeable and is totally flat. Some days I can see the indentation in my neck, and it is the same with my tattoos for radiation. Take care.

      about 1 year ago
  • Mamaswagon's Avatar

    Mamaswagon shared an experience

    Other Care (Other Conditions due to surgery): Since I had my surgery I've had a bladder infection from all of the chemicals that they pumped through me and having family help clean me when I went to the bathroom, two antibiotics later its finally gone. Then I came down with follicleitis either staph or strep bacteria causes the infection of the hair follicles, so I have this itchy, raised, red ugly rash, now I'm on another antibiotic that I have to avoid dairy and sunlight (two of my personal favorites) and apply a topical double antibiotic ointment over the affected areas which is about 2" wide swatch over my ribs under the newly constructed breasts from arm pit to arm pit. I am unsure if the introduction of that was from a hospital procedures or from contamination by a caregiver.