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    Mandi75 wrote on Angie_P's wall

    Hi there. Your case is like mine. Inflammatory, HER2 positive, stage III, under 40. My diagnosis was Feb 2, 2012. How are you doing? Would enjoy hearing your story. :-)

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    Mandi75 shared an experience

    Radiation (External radiation ): Finished 20 radiation treatments. 10 more to go. Last radiation treatment will be Septmeber 17th. The worst part for me is the days when I have to be prepped for treatment and in the awkward position more than 10 or so minutes. My arm on my treated side goes numb and throbs and hurts. The arm on the other side, right, is in a kink and trembles. Then, my neck is in a kink too. My skin is doing well so far. Looks like I have a slight sun tan. Hurts a little when I try to sleep on that side and bra a little uncomfortable.

    1 Comment
    • Alyce's Avatar
      Alyce

      Yea! You are getting ever so closer in closing the chapter on this part of your journey! <;)

      about 4 years ago
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    Mandi75 shared an experience

    Radiation

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    Mandi75 started following

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    Mandi75 asked a questionBreast Cancer

    Lymph node removal options?

    11 answers
    • Mandi75's Avatar
      Mandi75

      I so appreciate everyone's posts. My surgeon wants to do the sentinel node biopsy and make the decision based on that. It is just such a new ground leaving lymph nodes in. I have to be radiated around the lymph nodes regardless. I keep leaning towards leaving them in.

      over 4 years ago
    • MarnieC's Avatar
      MarnieC

      Hi Mandi75, I wrote a blog post about the sentinel node biopsy just a few days ago: http://marnieclark.com/the-marvels-of-the-sentinel-node-biopsy/ - perhaps something in it will help you. Sending you lots of healing and love today. xoxox

      over 4 years ago
    • Mandi75's Avatar
      Mandi75

      Thanks MarnieC for the blog link. Good explanation of the sentinel node dissection.

      over 4 years ago
  • Mandi75's Avatar

    Mandi75 posted an update

    Has anyone opted not to have their lymph nodes removed who opted to have radiation? My cancer was originally in various lymph node areas, but doing the chemo first has shrunk the tumor up and auxiliary nodes looked healthy on ultrasound April 5th. I am being told lymph node removal and radiation is a high risk for lymphadema. They are saying since I am doing radiation, I have the option about lymph node removal. There are studies out that lymph node removal is not increasing survival rates, but many surgeons are slow to change protocol. My surgeon is open to my choice.

    1 Comment
    • irenesf's Avatar
      irenesf

      First oncologist wanted me to have all lymph nodes removed because cancer showed in one initially before chemo. I needed chemo first and them tests showed no more cancer in lymph nodes.I switched oncologists because the first one wasn't caring or concerned about side effects.New oncologist is wonderful and compassionate. I had 2 sentinel nodes removed and kept the others and avoided lymphodema. I had radiation.

      over 1 year ago