• gaylegrace's Avatar

    gaylegrace wrote on mandybruin's wall

    Mandy, if you are Stage 2, why do they have you on ibrance? I was on dx with stage 2 invasive ductal cancer, not in lymph nodes. Had mastectomy with reconstruction. 17 yrs later it came back in other side. Stage 4. I was 44 the first time.. the 2nd time was in 2012. Surgery again, chemo, radiation, letrozole.. letrozole lasted 1 and half. Drs didn't catch that it came back until Feb of 2015. I was put on ibrance then because it had spread to my bones. I am 68 and doing good so far.

  • gaylegrace's Avatar

    gaylegrace wrote on mandybruin's wall

    Mandy, I have been on Inrance for 5 yrs. Normally it on lasts for 9-10 months and I am stage 4. I take it with Faslodex. Keep taking it

  • mandybruin's Avatar

    mandybruin asked a questionBreast Cancer

    What are your thoughts/experiences with Immunotherapy?

    8 answers
    • Terri's Avatar
      Terri

      I have been on Yervoy three times. I have had Stage IV melanoma since 2009. This is a permanent condition. I am still alive. Immunotherapy is a miracle. I still have recurrences. I have them cut out, so far this is possible. I don't think immunotherapy is a cure all, necessarily, but in my case I believe it has slowed it down. Yervoy was so much easier than chemo, or TIL.

      7 days ago
    • petieagnor's Avatar
      petieagnor

      @debbien507. That is great to hear. I started that regime in April. Dr. issued a new script for 100mg. I get a CT scan every 3 mos & am due next week. This is my 7th kind of chemo. I'm triple positive which can be tricky. I feel more positive about my treatment now.
      @mandybruin. Dr. put me on an immunotherapy drug for 3 mons. My little nodule in my lung grew. Each of us is different so the results can also be different. The Ibrance has shrunken the spot to nearly where it was 3 yrs ago when it was discovered. I feel blessed.

      7 days ago
    • mandybruin's Avatar
      mandybruin

      I’ve had definite progression with a larger cyst in my neck and 6 new lesions on my liver. I’ve since started Immunotherapy but had to stop for a bit due to getting hospitalized for what turned out to be extensive blood clots. I started having acute symptoms the day I started this new treatment so that’s not the cause. I found out I’m only 10% ER+, which is considered triple negative and that’s probably why I wasn’t really benefiting from Ibrance (or Tamoxifen prior to recurrence or Faslodex).

      7 days ago
  • mandybruin's Avatar

    mandybruin started following

  • mandybruin's Avatar

    mandybruin shared an experience

    Radiation (External radiation ): I started radiation therapy to key spots on the left side of my body on 11/01/2018. It hasn’t been painful but I have noticed a feeling of tightness in my left shoulder and upper arm. I read that this is common with radiation therapy and recently started doing the stretching exercises recommended by the article I found. Otherwise, no major symptoms. Maybe some sensitivity in one of my teeth on the left side. Last treatment will be 11/14/2018.

    1 Comment
    • tlalex's Avatar
      tlalex

      I was fortunate enough,because of developing ‘cording’ on affected side right after surgery, to be referred to a physical therapist through md Anderson right at my treatment site. She specialized in cancer patients which is very important. She helped me so much not only to deal with the cording but to help relieve that tightening you refer to and to begin to restrengthen hurt muscles. She told me my right shoulder and arm was compromised for life but if I continued a short daily routine it would keep me from frozen shoulder, redevelop and maintain range of motion, overall discomfort and substantially lower forever risk of lymphedema. She developed a short stretching/strengthening program for me and even spent several sessions helping me with a totally unrelated issue. If at all possible I recommend insisting to your radiologist that you need pt-some insurances will bulk-it’s expensive!-unless you have an issue like I did but it’s definitely worth making a fuss to get it. I was so blesssd that pt is pretty standard at MD and my insurance company never gave me a hassle if dr recommended something with cause. This is one area that is so important but most often under emphasized or even not addressed that could definitely improve quality of life-glad you were able to come across some information-spread the word!

      11 months ago
  • mandybruin's Avatar

    mandybruin posted an update

    These surveys are difficult to qualify for! LOL!