• mandybruin's Avatar

    mandybruin shared an experience

    Radiation (External radiation ): I started radiation therapy to key spots on the left side of my body on 11/01/2018. It hasn’t been painful but I have noticed a feeling of tightness in my left shoulder and upper arm. I read that this is common with radiation therapy and recently started doing the stretching exercises recommended by the article I found. Otherwise, no major symptoms. Maybe some sensitivity in one of my teeth on the left side. Last treatment will be 11/14/2018.

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    • tlalex's Avatar
      tlalex

      I was fortunate enough,because of developing ‘cording’ on affected side right after surgery, to be referred to a physical therapist through md Anderson right at my treatment site. She specialized in cancer patients which is very important. She helped me so much not only to deal with the cording but to help relieve that tightening you refer to and to begin to restrengthen hurt muscles. She told me my right shoulder and arm was compromised for life but if I continued a short daily routine it would keep me from frozen shoulder, redevelop and maintain range of motion, overall discomfort and substantially lower forever risk of lymphedema. She developed a short stretching/strengthening program for me and even spent several sessions helping me with a totally unrelated issue. If at all possible I recommend insisting to your radiologist that you need pt-some insurances will bulk-it’s expensive!-unless you have an issue like I did but it’s definitely worth making a fuss to get it. I was so blesssd that pt is pretty standard at MD and my insurance company never gave me a hassle if dr recommended something with cause. This is one area that is so important but most often under emphasized or even not addressed that could definitely improve quality of life-glad you were able to come across some information-spread the word!

      29 days ago
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    mandybruin posted an update

    These surveys are difficult to qualify for! LOL!

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    mandybruin shared an experience

    Oh No (Cancer has spread/Metastasized): My oncologist confirmed the results of the biopsy, placed me on the chemo drug, Ibrance, ordered a full body bone scan and, basically, a ct scan of my torso, and referred me to a Radiology Oncologist for radiation. The Radiology Oncologist ordered a PET-CT scan. The results showed that the cancer had traveled from the lymph nodes in my neck down to the lymph nodes in my abdomen and that I have a large mass under my arm, all on the left side, and a nodule in my right lung. The tests did not show any cancer in my organs or bones.

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    • jillybean56's Avatar
      jillybean56

      Hopefully Ibrance will slow down progression. Are you taking Letrazole or some other hormone inhibitor with it since you are HER2-? Have heard it does not work without both, and have also heard that Letrazole is just as effective even without Ibrance, so if you cannot tolerate Ibrance, you can just stay on Letrazole. Something to ask your onco about. Remember, Ibrance is not a drug for cure, just to put things to sleep for a while and stop progression, buy you time. Good your organs are clean, that is a bonus! Wish you luck with it.

      about 1 month ago
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    mandybruin shared an experience

    Oh No (Cancer is back/Recurred ): After finding a lump in my neck, I went to see a doctor in Urgent Care who ordered an ultrasound and a blood test. The ultrasound showed that the lump was three swollen lymph nodes so I was referred to the ENT doctor who ordered a CT scan of my neck and my oncologist ordered a biopsy of the lymph nodes. The biopsy was positive for breast cancer, which the CT scan showed as well.