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    Maret started following

    Question: IBC

  • Maret's Avatar

    Maret wrote on NervousNellie's wall

    Congratulations! I was diagnosed with triple negative IIIB also in January of this year. No Brac 1 or 2 either. Straight across the board negative. Have 6 more weeks of chemotherapy left, then lumpectomy and 6 weeks of radiation. I'm glad to see people who have gone through this and are now cancer free. It sure gives me hope and positive thoughts for the future outcome. Ty for sharing your story.

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    Maret wrote on Ryanator's wall

    Hi, I'm Karen. I was diagnosed with triple negative breast cancer.
    Stage 3b with a 3cm tumor with some nodes affected. Chemo is the only treatment for this type of cancer. No hormone therapy works for this. I was diagnosed in January of this year. Had a port put in on February 1st for the chemo. Started chemo on February 8th. Had four rounds of AC heavy chemo called the red devil. Now have had two rounds of taxol, with each one being every week now for a total of 12 weeks. So a total of 5 months of chemo. Then will have a lumpectomy and node removal about a month after all chemo stops and then two months of radiation. So whole process is about 9 to 10 months. No hormone therapy after everything is done unlike other types of breast cancers. I can tell you that so far my tumor has been very responsive to the chemo. After first chemo it shrunk from the size of a strawberry to a size of a pea. By third chemo you can't see it or feel it anymore and breast looks normal, so so far mine is reacting very well according to doctor. The side effects from chemo are difficult but if it saves your life and the cancer goes all away, its worth it to lose all your hair, lose your taste and appetite, etc.

    6 Comments
    • Ryanator's Avatar
      Ryanator

      Yes it very helpful to talk with others that really can relate. Family and friends are supportive , but like you said can’t possible really understand unless went through , not to dismiss their support at all it is much needed also. The emotional part is draining , that I’m sure it’s hard on all dealing with this. I do appreciate any and all support .
      Thank you again

      about 1 month ago
    • Maret's Avatar
      Maret

      My fb is karen briseno. I have blonde hair and am wearing a black dress with pink flowers and green leaves. Look for me and you can add me and we can send a fb message to exchange phone numbers if you like.

      about 1 month ago
    • Ryanator's Avatar
      Ryanator

      I am not on Facebook but have access to my husbands , he doesn’t care if I use his , so it would be From Jim Burmester , we live in Cudahy , WI

      about 1 month ago
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    carebear55 wrote on Maret's wall

    Hello Maret....why I asked is yes the neuropathy and I have it in both feet and hands. Nervous system damage, lining of stomach damage (it has healed by itself). Brittle bones, I have broke my leg and a year later broke my ankle in three places. The worst is only half of my heart works. I went into congested heart failure a year after they stopped the chemo early. My heart problems are because of the red devil. My heart was checked before I was given chemo and it was fine. I take 26 pills a day 24 are because of the red devil. I get a shot every six months for my bones. Red devil is the only chemo I had. I am one year older than you. They couldn't correct my heart with medicine so I have a difibulator and a heart monitor by my bed. If I have to travel I have to take my heart monitor. I am one year older than you. It has been a long difficult road. It will be three years in July since the chemo was stopped. I am just now starting to feel better. Yet every day is a challenge and I get exhausted easy. I wish you the best and pray your chemo health is a minimum. Thank you for writing...I wondered how you could contact an individual. Please keep me informed with you progress.

  • Maret's Avatar

    Maret wrote on carebear55's wall

    Hi carebear. The first two red devil chemos went fine. The third one last week went fine until about 2 days later. I've list all taste completely, got neuropathy in both feet and one hand and just got thrush in the mouth yesterday. Apparently all common side effects with this chemo. I didn't know. Have last red devil one this Friday and then on to once s week on taxtol which is suppose to be more tolerable?

  • Maret's Avatar

    Maret wrote on Twsardonyx's wall

    Hi I was just diagnosed with tnbc in January myself. Triple negative as well so I know what you are going through. I just finished my 3rd chemo of the red devil and it has caused a lot of side effects on this 3rd one. The first two were much more tolerable. I am also a stage 3b as well. Unfortunately chemo is the only type of treatmment for this type of cancer. Right now I'm talking to another lady on this site with exactly the same diagnosis etc who lives in Virginia beach. I'm in California but would love to reach out and talk to you. The other lady and myself have become a good friend and support system for each other. We talk over the phone often and discuss problems. procedures etc. Its good to talk to someone else going through the exact same thing. So reach out if you would like to talk and we can connect through Facebook messenger and exchange numbers on there since this site is too public. If not comfortable it's ok too. Hang in there though we will all get through this and kick cancers butt for sure!

    6 Comments
    • Maret's Avatar
      Maret

      Twsardonyx if you would like to talk etc be happy to talk to you. We can connect through fb messenger first.

      2 months ago
    • Twsardonyx's Avatar
      Twsardonyx

      Sounds good, how do we get each others info? Is there a DM here?

      2 months ago
    • Maret's Avatar
      Maret

      My fb is karenbriseno. I had blonde hair and am wearing a black dress with flowers (pink. Etc) on my profile pic.

      2 months ago