• margie1's Avatar

    margie1 shared an experience

    Loss (Lost loved one): Lost my sister Audrey to her 5 year battle with non small cell lung cancer in April

  • margie1's Avatar

    margie1 asked a questionLung Cancer

    Lung Cancer, Brain Mets

    • carm's Avatar
      carm (Best Answer!)

      margie1,
      If you are questioning the journey to date and the rationale behind the plan of care, then I would strongly suggest that you either ask the oncologist why this is the course of treatment or seek a second opinion. I am an oncology nurse and sometimes as the treatment progresses there is a need to amend the original plan. The treatment for most cancers is very fluid and can be altered at a moments notice based on lab or scan results, side effects or hypersensitivity or a change in the patients health status. Either way, it would be a good idea to gather your questions together and ask for a family consult. You and the patient are as much a part of the team as everyone else. When you ask these questions and show your investment into the situation, oncologists tend to become more forthcoming with the information that you seek. Best of luck to you, Carm RN.

      over 3 years ago
    • HotRodTodd's Avatar
      HotRodTodd

      Sorry for your dear Sister's diagnosis, it's hard to watch a loved one go through this. Carm gives some good advice.

      over 3 years ago
    • CAS1's Avatar
      CAS1

      Don't be frightened of Brain Mets. I know many many people who have had them with LC and the radiation zapped them to death and they remain cancer free. That being said:
      Make sure you read the on line information at the Bonnie J. Addario site
      Make sure you are with a LC expert who has had mutation testing done
      Read many of my posts here about LC

      And look into clinical trials for PDL-1.

      Stay calm and stay the course

      over 3 years ago
  • margie1's Avatar

    margie1 asked a questionLung Cancer

    Lung Cancer non small cell, now lesions in brain

    • SueRae1's Avatar
      SueRae1

      Hugs and healing vibes to both of you. Just be there for her, and take care of yourself. Find out if she would like you to take her to her sessions, if she needs meals, etc. You may want to field phone calls and notify friends and relatives, if that is what your sister would like.

      Best of Luck to both of you.

      over 3 years ago
    • GrammaLeslie's Avatar
      GrammaLeslie

      Like SueRae said, be there for her and ask if she would like some help. I went through 17 brain radiations and needed more help with that than my chest radiation therapy. I needed more sleep and quiet time during these daily sessions, they wiped me out. Every person is different but I am sure your sister will need some help. God bless you both, Leslie

      over 3 years ago
    • CAS1's Avatar
      CAS1

      Know this..Many many people have lived a very long time after brain mets from LC. They got zapped and never came back. So hold on and have hope. The process is said to be painless but can cause fatigue so be aware of that.

      I am not sure who told her the 'Cancer was gone" what should have been said is "in remission". This is why there is a 9 year waiting period after initial Dx of LC to be considered cancer free.

      over 3 years ago
  • margie1's Avatar

    margie1 shared an experience

    Procedure or Surgery (Video assisted thoracic surgery): Hospitalized for 10 days, lung vac on and off, both wet and dry. Breakthrough pain with epidural and max meds. As she felt better, the bitchier she became.

  • margie1's Avatar

    margie1 shared an experience

    Oh No (Diagnosed): Stage 1 Adnocarcinoma, operable. Husband left. Patient indigent and living with me.

  • margie1's Avatar

    margie1 started following

    User: GregP_WN