• mariet's Avatar

    mariet asked a questionBreast Cancer

    What is Gilda's club? to cassieme1

    4 answers
    • RachaelC@StF's Avatar
      RachaelC@StF Community Outreach Coordinator 317-528-7794

      Some Gilda's Clubs switched names a while back and are now called Cancer Support Community. I work with them on a day-to-day basis as they offer wonderful programs both at their own location and remotely at St. Francis. They offer everything from cooking classes to yoga to support groups to kids activities to educational workshops and even some one-on-one therapy sessions. They are a wonderful organization - I really recommend either finding a Gilda's Club or Cancer Support Community near you if you are looking for some type of support.

      about 3 years ago
    • fiddler's Avatar
      fiddler

      Gilda's Clubs can be located here: http://online.cancersupportcommunity.org/locations/

      about 3 years ago
    • Nonnie917's Avatar
      Nonnie917

      Wasn't this club founded because of Gilda Raddner? She died of ovarian cancer and that was the first time I had ever heard of that type of cancer. It is amazing how far we have come today in making people aware of the different types of cancer that are out there so people have more knowledge as to what to look out for to protect their health. Thanks for sharing the info on this club. I know we don't have one in our small town and the nearest big town that might have a club is Seattle and it's over an hour away from me. In the meantime, I use this site for my support and information. Thank you all who participate and share on this site. You have been more help than you know.

      about 3 years ago
  • mariet's Avatar

    mariet started following

    User: GregP_WN

  • mariet's Avatar

    mariet shared an experience

    Other Care (Physical Therapy--part 3): I am going through physical therapy right now, and I am finally receiving some pain relief! The PT does myofascial massage, which is the most incredible thing. While it hardly feels as if she is doing anything, I feel my muscles relax and the pain drain out for a short while. If I could, I would have this type of massage done daily.

  • mariet's Avatar

    mariet shared an experience

    Other Care (Psychosocial): I also go to two groups that are led by my therapist, and to another one at Gilda's club. The two groups led by my therapist are DBT and Pain Management; the original group at Gilda's Club was called LAT (Life After Treatment) even though I haven't yet stopped dealing with problems from the surgeries and reconstruction.
    I'm so grateful to Gilda's Club; I don't know what I would have done without all of the support--from their staff and from other patients. I tell anyone I meet who is taking the cancer journey to get in touch with Gilda's Club. There are programs for cancer patients, their families and friends, and some just fun activities that probably provide the greatest therapeutic benefit. While a group sits around doing some sort of craft, our stories and issues are shared, and resources provided, and its nice not to feel so alone.

  • mariet's Avatar

    mariet shared an experience

    Other Care (Psychosocial): I have been so blessed by the psychologist with whom I work; I met her before being diagnosed with breast cancer but while dealing with issues that looked like I had pancreatic cancer instead....she is a two-time breast cancer survivor and gave me so much assistance going through all of the tests and procedures that (thankfully) ended with a diagnosis of acute pancreatitis. I had my gall bladder removed in 1995, but either the surgeon failed to open both ends of the bile duct or it closed because of scar tissue; either way, I had gallstones and underwent 2 ERCPs in 2008, and another one this past January. Pancreatitis causes horrible pain, but it can be treated through diet and medication, and while I know it will continue to come and go, I know the symptoms and don't panic.
    Largely, that's due to knowledge and being able to discuss what's going on in my life without someone freaking out on me; e.g., family and friends.

  • mariet's Avatar

    mariet shared an experience

    Procedure or Surgery (Surgery): The 2nd surgery was not as rough as the first, except that the amount of tissue removed from the chest wall has resulted in so many problems--the major one being that there is not enough muscle left to support the right implant, and I've had 2 surgeries (so far) to keep it from sliding. I wish that I knew more about the procedure--I wouldn't even mind seeing the tape of the operation--so I could understand why there is so much more damage on this side.