• Marisol25's Avatar

    Marisol25 asked a questionBrain and Spinal Cord Tumors in Adults

    Is the Proton therapy recommended for GBM? My dad's doctor said my dad doesn’t qualify for it!

    • geekling's Avatar
      geekling

      Ask why not.

      You are entitled to clear explanations of all decisions.

      over 4 years ago
    • cards7up's Avatar
      cards7up

      GBM, what stage? Is it only in the brain? Read this from the ABA about proton radiation. It's not the right radiation for every type of tumor. And also what Geekling said, ask his doctor why not?
      http://www.abta.org/secure/proton-therapy.pdf

      over 4 years ago
  • Marisol25's Avatar
  • Marisol25's Avatar

    Marisol25 asked a questionBrain and Spinal Cord Tumors in Adults

    My dad has GBM grade 4 (61 years old) and is going to have Radiation and Chemotherapy at the same time what we should expect?

    5 answers
    • barryboomer's Avatar
      barryboomer

      http://www.ctvnews.ca/health/scientists-studying-effect-of-ketogenic-diet-on-brain-cancer-1.2853439 Check this out and do some more research....Some people do very well with chemo and radiation.....Don't give up hope....

      over 4 years ago
    • suzbri's Avatar
      suzbri

      I had chemo/pill and radiation 5 days a week for 6 weeks. Finished 6 months ago. Lost my hair in that area, however it growing back! The first four weeks - didn't feel a thing! Last two week of radiation was the worst: your brain swells and was put on a steroid for the pain. However, the pain lasted just a few days. He will be exhausted! Hope he can just sleep, up to 10 hours in the day and night.

      I would also recommend the Ketogenic diet - I believe sugar feeds cancer. No sugar, carbohydrates, pop (even diet), etc. I believe this has made a world of difference in rebounding and defeating "brain fog". Lots of alkalized water.

      My prayers are with you and your dad.

      over 4 years ago
    • HVG's Avatar
      HVG

      My Dad was in the same position. He did the chemo/radiation regiment. He tolerated both well, but was tired. No one reacts exactly the same. My one suggestion is to find an oncologist that you, your dad and family can trust. We were very lucky to have a doctor in Columbus, IN that took good care of my dad. He lived almost 5 years from diagnosis. Praying for you in this journey.

      about 4 years ago
  • Marisol25's Avatar
  • Marisol25's Avatar

    Marisol25 shared an experience

    Procedure or Surgery (Surgery): He went into surgery, naturally we were scared of the side effects, but I can happily inform that the surgery went really well. The doctor took out all the tumor cells that he could see. My dad came out of the surgery hungry (he ate two sandwiches!!!) and he was talking. No pain at all. We could not stay with him overnight because he was in the intensive care area. The next day, still no pain, he walked a little and everything went according to plan. My dad stayed 2 nights at the hospital and he was eager and ready to go home!

  • Marisol25's Avatar

    Marisol25 shared an experience

    Oh No (My dad was a healthy man and it seems that he changed from one day to another Oh NO!): Latterly one Thursday he was normal and on Friday we started noticing abnormality walking, weakness of his right side of his body, inability to speak or understand and mental confusion. Oh NO what is going on? We took him to the ER and he did not leave, first they thought that it was a stroke, but the MRI showed the tumor.