• Mark65's Avatar

    Mark65 wrote on SandiA's wall

    I removed restrictions on My Facebook allowing anyone to ''Friend'' request me! are there any restrictions on yours?

    3 Comments
    • SandiA's Avatar
      SandiA

      Okay great I just sent you a friend request! I see you uploaded your picture! It took me a while to figure it out too! There are some melanoma Facebook groups I belong to too. I will try and send you some links in case you are interested in joining some of those.

      9 months ago
    • Mark65's Avatar
      Mark65

      Naaaa, but thanks, You're pretty much the only person I talk to bout' his stuff other than Facebook where I only allowed people I've actually met in person (except you,lol!) to ''Friend'' Me!

      9 months ago
    • SandiA's Avatar
      SandiA

      I completely understand!

      9 months ago
  • Mark65's Avatar

    Mark65 wrote on SandiA's wall

    tomorrow going to try figuring out how to upload a photo of me onto my computer from my phone then upload to this site but I am TECH. challenged, lol! or hey, you're welcome to look me up on Facebook? Mark Newman (full face photo wearing a straw Beach hat) but maybe difficult to find me ??

    5 Comments
    • Mark65's Avatar
      Mark65

      My 'Cover Photo' is Me (Bald) wearing sunglasses, my Japanese Wife and Son in Hawaii standing in front of the USS Bowfin-Submarine -Blk/Wht- photo!

      9 months ago
    • Mark65's Avatar
      Mark65

      I do have a Blk/White Pitt-Bull Mix who is one of 10 others (2-already died from neglect) the Owner didn't want (City of Watt's CA. around corner from Famous Watt's Towers) as (Registered)-Mama Blue Nose pit (Sweet, sweet Dog!) was 'tagged' by a American Staffordshire ''(No Papers)'' got into yard from down the street took away the Value so just wanted to get rid of but only being 1-week old at time had to wait but visited every weekend bringing Bag food for ALL to be sure safe, fed and wait for 8-weeks to prevent separation anxiety etc...and Wow, the Guy I knew from work (Temp. worker) that introduced me to his Shared Yard neibors and Dogs was married/kids had soon after Shot his wife, then was himself Shot by Police-OUCH! don't know what happened to other Pups!!?

      9 months ago
    • SandiA's Avatar
      SandiA

      Oh wow! That’s so sad. I am glad you were able to rescue the one doggie. My terrier was dropped on the side of the road at 8 weeks with a broken leg. I met him in a shelter and fell in love. They won’t let me take him home right away. They had to make sure no one claimed him. They called me a few days later and asked if I still wanted him. I said of course. Drove down and picked him up. Not sure if you saw my videos on WhatNext! Greg had me do a series for What Next. Anyway Maddux sits on my lap almost through all of them. Buddy joins him for a little bit but Buddy passed last year. He was a dachshund/Chi mix. He was the sweetest dog I’ve ever owned. Anyway I did find your Facebook page but I couldn’t send a friend request. So I’ll try again. If it doesn’t work I am Sandi Armstrong from Culpeper Virginia. In my picture I am with my son and daughter in law at a baseball game. We have Rockies hats on. My background i am with my sisters and our husbands at a Nats game.

      9 months ago
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    Mark65 wrote on SandiA's wall

    Hey SandiA! just wanted to stop by your wall letting you know my health has improved, very slowly (week-to-week) but I'm able to taste food again and my Nausea has become farther apart, less frequent and weaker which is why I think taste buds coming back and as long as I sit still and relax after my meals giving time to digest I've not Vomited for a while. I'm still taking blood thinners , Prilosec (double dose, twice a day) until told not to but my skin scratches and bleeds easily -ugh! Appointment with my G.I. (gastro-intestinal) Dr. on 13th this month and not sure what to expect and Also MRI- full body Scan on 22nd Which honestly is causing me Anxiety and also my Diabetes making things complicated as my Sugars are going kinda haywire and my Endocrinologist has been off past few days and can only MRI-scan when sugars within 70-200 with hasn't been happening lately at the 7:am appointment time I have set. Type-1 Diabetes has my life complicating and completely changed my lifestyle as it now dictates my feeding habits, activities etc... basically putting me in a box and Praying Hard for Jesus to heal me as I used to be so active and spontaneous as I'm naturally hyper etc... but now...restless, stressed, depressed as I still tire very easy, I've started resistance training again (weight lifting) but Wow, still weak and have only gained a couple of pounds in body weight now weighing 160lbs. but should be bout 185lbs. with what used to be my musculature and I started this whole Cancer thing at 207lbs. but fit and very active and getting late for me now but again want to very much say how very glad to have You to whine and complain too! love you for that!!!!!! I wanna Pray for Health and Recovery for You and I in that it be a part of Gods Will in Jesus name---AMEN!!

    1 Comment
    • SandiA's Avatar
      SandiA

      Hi Mark, I am so glad to hear from you! I am so happy there has been some improvement. I can’t imagine the nausea for as long as you had it. I can handle lots of things, but I turn into a big baby when I am nauseous. So Praise the Lord that’s better. And the taste buds. That’s a real answer to prayer. I am so sorry for the diabetes. I went to my great nephews baseball tournament today. It was fun watching 9 and 10 year olds playing some pretty good baseball. My brother in law was there and he is battling stage 4 colon cancer. He said everyone tells him this is the new normal. He told me he just wants his old normal back so bad. I told him I could relate. Unfortunately I think we can both relate. I am so glad you are able to do some training again. I decided one day I was going to start walking the dogs some. I got a little further every day. Still can’t make it out to the main road but I am determined to do it some day. I am still dealing with the swelling. I think we have almost narrowed it down to an issue with my neck. Tomorrow is the mri of my spine. The good news is they don’t think it is a reoccurrence on the cancer just another side effect of two surgeries and radiation on the neck. I see my doctor on the 13th to get the results. It was so good to hear from you and I am encouraged to hear there is some improvement. I will keep praying for continued healing and great results on the 22nd! We will get there!!!! Sandi

      9 months ago
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    Mark65 wrote on SandiA's wall

    Hey SandiA,It's Mark again and depressed-Ugh! I'm 2-months finish/last Opdivo but still feeding Intravenous TPN-nutrition bag home now but was(Gastritis-2-week hospital) still trying to beat the Nausea , little/no appetite and No taste buds, how long did yours stay turned off?

    2 Comments
    • SandiA's Avatar
      SandiA

      Hi Mark! I am so sorry to hear this. Was hoping you were feeling better. I lost my taste buds but with the radiation. It took probably about a month to return to normal. I never really lost my taste buds with the opdivo. Every side effect I dealt with they treated with steroids so I had the opposite problem. I wanted to eat all the time but then if I added pain pills to it I wanted to eat and didn’t at the same time if that makes sense. I know when I couldn’t eat I found instant breakfast or smoothies went down better with a straw. Not sure why but it helped. It may be worth putting out a question to the WhatNext community. Even though they don’t necessarily have melanoma a lot of them have dealt with nausea, loss of taste buds and very similar issues. There might be some people out there with good suggestions. I do know there are some that have done the intravenous feeding. Praying for better days ahead. Sandi

      10 months ago
    • SandiA's Avatar
      SandiA

      Hi Mark, just checking in! How are doing? Are you able to eat anymore? I went to Nashville for a few days then on to KC to see my son and daughter in law. Had a great time and managed to stay fairly healthy. Still had bronchitis when I left for my trip but it finally cleared up.

      9 months ago
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    Mark65 asked a questionSkin Cancer - Melanoma

    Taste BUDS after OPDIVO immunotherapy

    12 answers
    • Mark65's Avatar
      Mark65

      I'm waiting for My Dr. to call me today (Mon.) 4:pm to tell him about my swelling and still leaking clear watery liquid from original PICC-Line (feeding tube site) in my left arm but removed (now right Arm) because of blood clot closing three Veins and Arm swelling and now causing a rash asking my wife to get me HEAVY duty Tampons to bandage with to draw away moister because of rash developed but yes I've been eating small and trying(no apitite ) to eat Brk,Lnch,Din. wanting stay off TPN-nutrition bag.

      10 months ago
    • Mark65's Avatar
      Mark65

      SandiA, I spoke with the Doc. and he's contributing the swelling to the Double Dose steroids I'm taking however; He instructed me to go ahead and Stop taking (usually gradually) but only used for couple weeks so shouldn't be a problem cause the Double dose PRILOSEC has been helping with Digestion issues and to continue taking until get another Camera down my throat again-UGH! but to also stop but hold onto some TPN-Nutrition bags (just in case) as long as eating/passing (very small meals anyway) etc...First PICC-Line site still leaking and moisture rashing but he didn't seem too (as long as not Oozing/infected etc...) concerned so...trying to keep it dry with thick absorbing Tampons for bandage to draw moisture away.

      10 months ago
    • SandiA's Avatar
      SandiA

      Wow Mark! That’s a lot to deal with but i am glad they called you back quickly. If never even dawned on me until you said it. I take double Prilosec every day. He started me on that years ago. Now it makes sense. That must be what is keeping my stomach from cooperating. I really hope some of these changes help. Hang in there and keep letting us know how it goes.

      10 months ago