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    marmot posted an update

    My husband will have his last treatments for follicular lymphoma next week at Karmanos Cancer Institute in Detroit. While we are so happy with his treatment there: bendamustine and rituxan, we want to share the additional help he received from an alternative MD that we have used for years. The doctor said he could help my husband with side effects, including white cell blood count, any nausea, etc. These are curcumin, Oncoplex ES, Celapro, and Avemar. I think these are available w/o a prescription.
    I know people have strong feelings one way or the other regarding supplements, but these really helped my husband. He feels great, even throughout his treatments! You might want to investigate this further if it sounds interesting. I am glad to answer any questions I can. Sue P.

    2 Comments
    • GregP_WN's Avatar
      GregP_WN

      Great! Good news, it's always good to be at the end of treatment. We are happy for you. Let us know how the supplement treatment works. others might be interested.

      over 4 years ago
    • marmot's Avatar
      marmot

      My husband has been on the supplement treatment since the start of the regular chemo treatment, and we believe that is why has felt so well the whole time. It has been amazing.

      over 4 years ago
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    marmot wrote on cathydalhed's wall

    Hi, Cathy,
    Good luck to you in your journey! I have a question regarding diagnosis at Stage 2. My husband is being treated now for follicular lymphoma, and he was not diagnosed until he became symptomatic, pain from an enlarged spleen. He had lots of tests, and within the next month was diagnosed at Stage 4. We are wondering how anyone gets diagnosed before symptoms and as early as Stage 2. The doctor said he could have had it for awhile and not known it. Any thoughts??
    Thanks, Sue P.

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    marmot posted an update

    My husband was diagnosed with follicular lymphoma in September and is doing very well with his treatments. However, by the time he actually had symptoms and was diagnosed, he was at stage 4. I am wondering how this could ever be diagnosed earlier? Some people on this site seem to be only at stage 2 or 3 when they start chemo. Thanks for any input on this question. Sue P.

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    marmot asked a questionNon-Hodgkin Lymphoma (NHL)

    Weight loss during chemo

    10 answers
    • HeidiJo's Avatar
      HeidiJo

      I lost 22 pounds total during chemo, but then after chemo, I gained it back and 10 more! I just lost 37 pounds though. I think it is pretty normal to go up and down.

      over 4 years ago
    • PhaedraB's Avatar
      PhaedraB

      I haven't lost any weight on that treatment. Been joking with the docs that it's just my luck that I get a cancer that doesn't make you lose weight. I actually gained a bit at first, 5-8 lbs, which might have been related to the big change in my activity level, but then it went back to the start point. Still heavier than I used to be, but my activity has changed so much there's likely a connection with that.

      Weight loss with most cancers is because the tumors use up more of the available calories. That doesn't happen commonly with this form of lymphoma. However, if you've changed his diet or making healthier nutrition choices than before, that might be the simple answer. But if it were me, I'd definitely bring it up with the doctor.

      almost 4 years ago
    • Kathy55's Avatar
      Kathy55

      I has the same treatment I experienced some weight lose. Not enough for my oncologist to be too concerned.after chemo fatigue and no appetite forced myself to eat applesauce hello Ensure hard boiled egg yogurt. Gradually appetite started coming back just in time for next chemo treatment. I'm in maintence chemo now (Rituxin) every 2 months for another year. Trying to maintain a normal life. Good and not so good data fatigue and muscle fatigue. But life is good. Hang in there

      over 3 years ago
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