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    MarS676 asked a questionBreast Cancer

    Remission, NED, Cured?

    8 answers
    • JennyMiller's Avatar
      JennyMiller

      Congratulations!!!
      In October 2012, I asked my Oncologist what I was considered -- in remission? -- cancer free? -- or what. She said "remission" indicates that the disease is still there but inactive whereby, at this time, I had no no evidence of the disease so she pronounced me "CANCER FREE".
      Those words were music to my ears. Now -- if I can just stay that way. My goal is to be on guard but not to be paranoid. I have kept all my follow-up appointments and I will be having Scans on May 3.
      Of course, I am already getting nervous but am trying to maintain that positive attitude that is so
      important. I wish you the best.

      about 7 years ago
    • debco148's Avatar
      debco148

      You have no evidence of cancer. Once this occurs you will either do adjunct therapies to prevent such as AI or Tamoxifen, but also lifestyle changes ie diet and exercise. The goal now is no recurrance! I am in the same situation right now myself..check up, blood work, etc every 3 months for the rest of this year. No one knows if it will ever come back so if this continues for 5 years they say you are clear. I don't think remission is a word that applies since if you have no active cancer that needs to be kept at bay, so NED is the correct label for now. It is the time to enjoy your life again, free of treatment and disease!

      about 7 years ago
    • Nancebeth's Avatar
      Nancebeth

      Since there is no cure for breast cancer and it can metastasize years later, I was told I will never be cured but can hope to live with NED (no evidence of disease) for the reats of my life. I have been living with NED for 8 months now.

      about 7 years ago
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    MarS676 asked a questionBreast Cancer

    How long has your journey been?

    9 answers
    • JennyMiller's Avatar
      JennyMiller

      My Journey started in November 2011 and went as follows:
      Diagnosis was 11/11/11
      Surgery was 12/5/11
      Scans were 12/19/11
      1st Appointment with Oncologist was 12/23/11
      Port placement was 12/29/11
      Chemo was from 1/5/12 to 4/12/12
      Radiation was from 4/30/12 to 6/23/12
      Started Arimidex on 6/30/12

      I will have follow-up Scans on May 3, 2013 and will see my Oncologist on May 10.
      After that, I will keep the regular follow-up appoinments and be on alert for any changes
      in my body. I know that I will never be the same person that I was before but that is not a bad thing as I now have a better appreciation of family, friends and life itself. I wish you the best.

      about 7 years ago
    • Nancebeth's Avatar
      Nancebeth

      DX - January 6, 2012
      Bilateral Mastectomy with Immediate Reconstruction with Implants - February 3, 2012
      Chemo Started - April 20, 2012
      Chemo Ended - August 17, 2012
      Clear Scans and started living with NED - Spetember 6, 2012
      Tamoxifen Started - September 2012
      Tamoxifen Stopped - November 2012
      Left Implant Replacement - November 1, 2012
      Hospitalization For Cellulitis Left Breast - February 26, 2013
      Partial Knee Replacement Due to Necrosis From Chemo - May 7, 2013

      I decided against any type of nipple/areola reconstruction, so I am hoping that after May 7, I am done. However, it seems that Lefty is being obnoxious again and might need to be replaced again...

      about 7 years ago
    • Mel's Avatar
      Mel

      Hi! In November 2012 found my lump (thanksgiving day!) January 2013 Lumpectomy; April 2013 Bi-lateral Mastectomy w/reconstruction; June 2012 Port in 2 weeks later started Chemo. November 2013 finished chemo; December 2013 Expanders taken out implants put in; I also chose not to do radiation with everything clear. Still have not done nipple reconstruction unsure what I want to do. The getting my life back after cancer. It is and it's not, for me just always there now I don't dwell on it, but it changes you I guess I'd say. And praying nothing comes back.

      about 7 years ago