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    Question: @maryjane2006 was just describing some problems with the VA Hospital system that she is having. My Father was treated and cared for there

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    maryjane2006 asked a questionBreast Cancer

    frustrated with va and getting the tests I need.

    4 answers
    • geekling's Avatar
      geekling

      Yes. Go over that doctor's head. Write to your Commander in Chief and copy to the head of that department, that hospital, whoever is running the VA these days as well as your local newspaper (City Desk) and TV station.

      http://www.mayoclinic.org/tests-procedures/pap-smear/expert-answers/pap-smear/faq-20058344

      Best wishes.

      over 4 years ago
    • Lorie's Avatar
      Lorie

      Hi use the frustration and plez vent like Geekling said. Glad your onc is proactive.

      over 4 years ago
    • Rustysmom's Avatar
      Rustysmom

      The VA is so broken, and it's a disgrace to treat all the women and men who sacrifice so much for us in this manner. I'm very sorry you are having to deal with this. Also, I would request a pelvic ultrasound to diagnose possible ovarian cancer, as a pap won't show anything if the ovaries are involved. I just had one last week at the request of my OB/GYN since there is a link between my breast cancer and ovarian cancer. Best of health to you!

      over 4 years ago
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    maryjane2006 shared an experience

    Decision Point

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    maryjane2006 shared an experience

    Procedure or Surgery (Lumpectomy): WELL HAD A SECOND SURGERY AND WAITING ON MY RESULTS. BOY DO THINGS KEEP CHANGING. NOW THEY ARE SAYING 3 TYPES OF CHEMO ARE NEEDED AND RADIATION AND HORMONE THERAPY. MY CROHN'S IS PLAYING GAMES. HAVE STOPPED TAKING MY HUMARIA BECAUSE ALL THE HAVOC IT WAS CAUSING WITH HEALING AND INFECTION. START CHEMO ON28 IF I DONT NEED ANOTHER SURGERY.

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    maryjane2006 posted an update

    today sucked. things are changing. still no results from surgery or sentinal biopsy. but found out from oncologist that some other tests did. not good. definatly need chemo and radiation. 22 weeks of therapy. dealing ok on outside but inside i feel live a little kid.just scared. and i know everyone keeps saying i am going to be fine. well good. but right now i am not fine.

    3 Comments
    • GregP_WN's Avatar
      GregP_WN

      MaryJane, I do understand, I was right where you are now during the dx stage of my last diagnosis, my 3rd. This time I was mad, sad, scared, and a lot of other things. People would tell me that I would be fine, after all, I had already beat it twice, so this one should be easy, right? Not according to the info I had read. Made me start making my final arrangements. But then I finally got to meet my oncologist who was super positive and cocky about being able to knock this out of me, that one meeting changed my entire outlook. The chemo is tough, but lots of people take it and never miss a beat, same with the radiation. My first round with radiation was a walk in the park, no side effects, easy to take. The last time, 5.5 years ago on my last dx was pretty tough, but still easier than chemo. We all wish you the best and please check in and ask any questions you may have, there are others here that have already been where you are and will be glad to help!

      almost 6 years ago
    • Crimson's Avatar
      Crimson

      I was where you are not too long ago - I have only 2 more chemo treatments & then I will start radiation. It is all scary because we fear the unknown, but you will find the strength to make it through & beat this crappy diagnosis! We are here for you so use the site for questions & support. Good luck!

      almost 6 years ago
    • Ejourneys' Avatar
      Ejourneys

      I also have 2 more chemo treatments (out of 16 total, spanning 6 months) and then will have radiation. I also have mucinous carcinoma -- my surgeon and I were hoping I wouldn't need chemo, but my Oncotype-DX result pointed to chemo. I was plenty nervous before my first infusion, but as Crimson says it's the unknown. What helps me is cutting myself a lot of slack and focusing on dealing with each day as it comes. Feeling "not fine" is very normal, especially when so much else is not normal. I wish you all the best, and please don't hesitate to ask us anything.

      almost 6 years ago