• matty's Avatar

    matty shared an experience

    Loss (Lost loved one): Shaun 1984 - 2013
    11 months from diagnosis to dead.
    I have tried to keep witness to this timeline as a testament to my brother in law, but also as a resource to any who follows that is also diagnosed with this type of cancer at this age and in this way. Take care of yourselves and anyone else following or reading this - hold your loved ones close and squeeze realy hard. Make it last as long as you can.

  • matty's Avatar

    matty shared an experience

    Side Effects (Mood changes): Agitation, combativeness and all around restlessness has become the norm when the patient is awake. Meds are being administered to counteract as much as possible. Morphine, Haloperidol and Atavan are being used. The end is near, but not near enough for all involved at this point. Everyone is suffering. Hospice doctor says that the cancer just has to take him at this point - the problem is that his 29 year old heart and lungs are not going to give up the fight that easily. So difficult to witness.

  • matty's Avatar

    matty shared an experience

    Side Effects (Eating problems (anorexia)): Food intake has stopped as of a few days ago. Water is minimal. Perhaps 4 ounces per day at this point.

  • matty's Avatar

    matty shared an experience

    Side Effects (Communication Problems): Slurred Speech has set in. Frustration on the patient's part and the family. Inability to communicate wants and needs.

  • matty's Avatar

    matty shared an experience

    Side Effects (Paralysis - Lower): Patient no longer has feeling or mobility from the waist down.

  • matty's Avatar

    matty shared an experience

    Side Effects (Shortness of breath): O2 is being administered as necessary.