• Maui17's Avatar

    Maui17 wrote on lah524's wall

    Are you on Gleevec?

    2 Comments
    • lah524's Avatar
      lah524

      Yes 400 Mg gleevac

      over 6 years ago
    • Maui17's Avatar
      Maui17

      My husband has a GIST that spread to his liver before it was found.He has been on Gleevec for 2 years and looks and feels great.You would never know it is stage 4.His doctors feel the Gleevec is keeping him so healthy.How are you doing on Gleevec?

      over 6 years ago
  • Maui17's Avatar

    Maui17 wrote on Rondee's wall

    Wow you have been on a journey!You must have a great fighter sprit.I hope your feeling good.Where are you in BC? Ihoneymooned in BC 40 years ago.Love Victoria.Have a good weekend.

    4 Comments
    • Maui17's Avatar
      Maui17

      I really hope go see Toronto someday.I grew up in Seattle.Married and move to Minnesota.Wd retired 6 years ago and moved to Maui.You can email me at [email redacted] anytime.Be well.Lyn

      over 6 years ago
    • Rondee's Avatar
      Rondee

      Sorry! I called you Victoria! LOL! nice name but not yours! I was just in Seattle last weekend to see a mariners game! I am not far from Seattle at all! I am near the Sumas Washington border.
      I love Maui! My husband and I got married there in 2008. We went back a year later for our anniversary! We hope to get back there again one of these days. your email says (email redacted) ? Are you on FB! Thank you Lyn! it was nice hearing from you again! Warmly. Diana

      over 6 years ago
    • Maui17's Avatar
      Maui17

      Dear Diana,I guess you can't post email address's on this site.Yes I am on FB.Lyn Pederson.Send me an invite!How fun you got married on Maui.My husband is amazing.He thought it was the flu and 3 days later his hands and face got white white white.he was very tan and layed down,he woke up and said we need to go to the ER.They did a blood count and found out he had lost 75% of his blood.After 3 days in ICU and 19 pints of blood and plasma they found the stomach tumor and it had ripped open his abdominal wall and that's where the inter bleeding occurred.His cancer had spread to his liver and spine.It was stage 4.Now two years later his sailed thru radiation and takes Gleevec everyday.He has never had one day of pain.No fatigue or nausea.Nothing has changed.I hear all the horror stories and his doctors are baffled too.So we are very lucky.Nothing will change the fact that his terminal but until the other shoe drops we just live life.Please send me that invite on FB.With big hugs and much Aloha,Lyn

      over 6 years ago
  • Maui17's Avatar

    Maui17 wrote on Kerri's wall

    hi!!!My husband has a GIST also.Doing good with it.He takes gleevec daily.It is in his liver so we just take it day by day.Hope your feeling good.

  • Maui17's Avatar

    Maui17 shared a photo

    Wall_photo

    Papa and Musie walking granddaughter Grace on the beach in Maui before her and mom head back to Alaska

    4 Comments
    • GregP_WN's Avatar
      GregP_WN

      That looks warm and relaxing!

      over 6 years ago
    • AmyJo's Avatar
      AmyJo

      awwww, what a beautiful picture! Certainly a different place than Alaska! I hope they've enjoyed their visit!

      over 6 years ago
    • Maui17's Avatar
      Maui17

      Thank you for all your kind comments.....

      over 6 years ago
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