• mblea99's Avatar

    mblea99 wrote on MelanieIIB's wall

    Melanie thank you for responding I had only chemo and had 13 lymp nodes removed. I was trriple neg stage 3. I have been going back n forth to differnt types of doctors here in Thailand. I wont return to statws till next year. I cant believe there is just no relief

    1 Comment
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    mblea99 asked a questionBreast Cancer

    Hello brothers and sisters. I was wondering if anyone has information about postmastectomy syndrome?

    5 answers
    • Lorijoy812's Avatar
      Lorijoy812

      My mastectomy was January 2013 followed by chemo, radiation and final recon January 2014. I still experience pain, however, it's much better than it was a year ago. The pain I experienced for the 1st 18 months or so at times was unbearable. The pain is minimal and tolerable now. Physical therapy helped.

      almost 6 years ago
    • maylonie's Avatar
      maylonie

      I agree with Melanie11B: It would be helpful to have more information. Certainly, if we write from our own experience, you'd want to know our specifics. I had a double mastectomy in January 2015 with just 4/5 nodes removed on each side. My discomfort post-surgery for 3 weeks was strong contractions of chest muscles so I felt like I was being squeezed, plus occasional bouts of "nerve pain" (like being sharply poked). At 2 weeks or was it 3, my bandages were removed and I began gentle stretching exercises every morning. This was OK'd by the doctor because the incision healed nicely. I've had physical therapy to increase my range of motion because it was limited post surgery. Now at 6 months, I find I am pain-free except from "binding" around the armpits from excess tissue and fat (sometimes called "dog ears." I am so sorry that you are suffering so much pain. I hope you begin to feel better. I hope you can get the neurologist to explain what he/she meant by "PMPs on top of differential."

      almost 6 years ago
    • sheila56's Avatar
      sheila56

      I had a unilateral mastectomy with 5 lymph nodes removed. The most pain I suffered was on the morning after surgery; I believe that was the most pain I have ever suffered from anything. I stayed in the hospital an extra day for pain management. I didn't have pain from the cutting like I was told I might by the nurse that came to change my bandages; she was just trying to prepare me for what might come; as everyone is different. The medicine prescribed to me did however, help with that. Don't let the pain get too far; take medicine as scheduled to keep it in your system and you will be comfortable.

      almost 6 years ago
  • mblea99's Avatar
  • mblea99's Avatar

    mblea99 asked a questionBreast Cancer

    Is it normal for hair to grow back during treatment then fall out agsin?

    • cam32505's Avatar
      cam32505

      I didn't notice this problem. I had 3 chemos, then 6 weeks of radiation. My hair should have started to grow during the 6 weeks, but I didn't notice any growth. Anyway, it's been 2.5 years since my last treatment and my hair is past my shoulders, thick and healthier than before. Maybe, it's fresh hair, without all the styling products.

      about 7 years ago
    • HeidiJo's Avatar
      HeidiJo

      Mine did. I had chemo every 3 weeks, and it would grow back in between, them fall out after my next treatment.

      about 7 years ago
    • KLC's Avatar
      KLC

      I would think normal for hair growth to happen during recovery time. . .especially if your chemo was spread out every 3 weeks. . .

      about 7 years ago
  • mblea99's Avatar
  • mblea99's Avatar

    mblea99 wrote on Lirasgirl33's wall

    Hi Lirasgirl
    thank you so much for responding to my question. My pain is mostly in my legs sometimes my arms in back. Sometimes it feels like I worked out and sore then pain can vary from parts of my body shoulders back arms real achey.

    1 Comment
    • Lirasgirl33's Avatar
      Lirasgirl33

      You are very welcome. :) Hmmm, this sounds like pain I have experienced. Does it feel better if you apply a bit of pressure to the sore areas? If it does, I think you should try massage therapy, but don't go to just any massage therapist, go to one that specializes in cancer patients. Do some research, you might find a place that gives massages to cancer patients for free in your area. Thankfully I did find a place here in my area. The cancer center also sends a massage therapist twice a week. So it's nice to get a massage while I'm getting the chemo. Sometimes my daughter massages my legs and it helps a lot.

      I haven't yet tried acupuncture so I can't really give you any info on that. I'm just not a fan of needles, and it doesn't help that I watched the movie Final Destination, can't remember which one, but someone does die after falling off the table, while covered in the tiny little acupuncture needles I think. But please don't let that scare you. I really hope you are able to find some pain relief soon. Please know you are in my thoughts and I will send tons of healing thoughts and prayers your way. I always pray for my Whatnext family.

      over 7 years ago