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medulomom started following
User: matthewzachary
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medulomom shared an experience
Side Effects (Cough)
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medulomom shared an experience
Side Effects (Nausea/Vomiting)
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medulomom shared an experience
Radiation (proton): he lost his hair skin was burned to a point were it cracked and was very painfull, he is now telling me he lost some vision in one eye and hearing in one ear... god knows what else
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medulomom shared an experience
Drug or Chemo Therapy (Chemotherapy): my son had 6 rounds of vincristine
side effects were nausea, loss of hair loss of weight -
medulomom shared an experience
Procedure or Surgery: a few hours after the 8 hour surgery my son develloped Posterior Fossa Syndrome also knows as Cerebral Mutism... this was a shock as no one had told us this could even happen and it has made dealing with this cancer SO much worse. He just finished proton radiation and chemo and can't even go and have some fun to forget this ordeal for a few hours.. instead he is stuck in his body that cant move as he wants to. NO WALKING NO TALKING NO NOTHING....
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