• GregP_WN's Avatar

    GregP_WN wrote on Megfl's wall

    Welcome to WhatNext, we are sorry for your need to find us, but happy that we can help you. There are a lot of great people here that have already been through what you are facing and are willing to help you get through it too. If you have questions about anything just post them on the Questions Page. Others will chime in with their personal experiences.

    If you need help navigating the site, please contact me, we are happy to assist. We also have active social pages, you may wish to search those out also. Take some time and poke around the site, there is a world of information here that you will find. The more you dig, the more you will find.

    We may have an opportunity for you to make your voice heard by allowing us to share your information with our partner Rare Patient Voice (www.rarepatientvoice.com) and be invited to qualify for surveys and phone interviews for projects that apply to you and if you do qualify you will be compensated on a $100 per hour basis. There are pharma companies that would like to hear about your experiences with certain drugs or side effects. Your information might help develop the next generation of drugs.

    For now, what is the biggest issue that you are facing? Please post what you need to know on the questions page and others will help you.

    Thank you for joining us, if you have questions please contact us.
    Greg_P
    4X Survivor
    ACS Voice of Hope

  • BoiseB's Avatar

    BoiseB wrote on Megfl's wall

    Hi Meg
    No one should have to deal with cancer alone that is why we are here. Please continue to fill out your journey so we can get to know you and your loved one better. Feel free to ask any question. Also be sure to visit the BLOG page and the PINBOARD, you will find a lot of information, inspiration, and a bit of humor there.
    On March 19th I will be a 10 year survivor of stage IV esophageal cancer. I won't say survival is easy but it is doable.
    Sending prayers your way

  • chiefomni's Avatar

    chiefomni wrote on Megfl's wall

    I am an esophageal cancer stage III survivor of 19 years. We created the Esophageal Cancer Education Foundation www.fightec.org in part to help patients with their journey through this disease.

    We have co-authored a book called 100 Questions and Answers about Esophageal Cancer published by Jones and Bartlett and you can get at any book store.

    We have also published a book called Esophagectomy Post Surgical Guide Questions & Answers published by Authorhouse that you can get at any bookstore or on our web site www.fightec.org

    We have support groups that meet by conference call on a monthly basis. Patients calling in with quality of life questions and hearing how other patients have handled a specific issue.. Go to www.fightec.org and click on services to get more information.

    We also have a conference call support group for recurrence patients. This group meets on a monthly basis and we have a medical oncologist that joins the call. If you are interested please send an email to [email redacted]

    We also have a 24 hour hotline to help with quality of life questions as well. We have a You Tube Channel https://www.youtube.com/channel/UCDkh7_H9BOnNASdmG4pdF0g . If you subscribe to this channel, you will receive notice each time we add a video about esophageal cancer to it.

    Good luck
    Bart

  • Megfl's Avatar

    Megfl started following

    User: GregP_WN

  • DaveWaz's Avatar

    DaveWaz wrote on Megfl's wall

    Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

    Wishing you the best.

    David
    Founder, WhatNexter