• Mel's Avatar

    Mel wrote on leepenn's wall

    Thanks!! just wanted to tell you no I have not gotten my cycle back yet and in Aug. going to a new gyno. my oncologist recommends and wants me to talk about having ovaries removed for precaution reasons since Triple Negative..

    4 Comments
    • Mel's Avatar
      Mel

      Well with on top of being Triple Negative I am also BRCA1 positive that number one reason and then they say between age of 35-40 should consider it... So I don't know!!... :-)

      over 3 years ago
    • SDomiano's Avatar
      SDomiano

      in 2011 I was diagnosed with the BRCA1 my doctors are also recommended me to get my ovaries out. so I did but they said went through my chemo treatments and 4 months later it went to my liver, stage 4 liver cancer it also went into my bone. they don't tell you everything but be prepared

      over 3 years ago
    • SDomiano's Avatar
      SDomiano

      I also was triple negative so he's telling you right. but make sure you asked about the other, and getting genetics test done.

      over 3 years ago
  • Mel's Avatar

    Mel asked a questionBreast Cancer

    BIRTHDAY!

    21 answers
    • gwendolyn's Avatar
      gwendolyn

      I am a year post diagnosis this weekend. My funk still comes and goes. Try to find something you enjoy to distract yourself.

      almost 4 years ago
    • gwendolyn's Avatar
      gwendolyn

      Maybe spend some time with that gorgeous dog of yours!

      almost 4 years ago
    • Bug's Avatar
      Bug

      Happy Birthday, Mel! : ) I hope your funk is subsiding.

      almost 4 years ago
  • Mel's Avatar

    Mel wrote on HearMeRoar's wall

    Hi!!....
    I have 2 sisters and 1 brother I am the oldest. Same thing in my case I just got done with my chemo. and my baby sister (26) called said she found a lump went had a biopsy and came back cancer (she lives in NC I live in OH) So of course she told doctors about me so they whipped her right through everything it seemed like she also tested positive for the BRCA1 gene she of course asked me tons of questions and I gave her all the info, advise I could think of that applied to me. She went in and also had the Bi-lateral Mastectomy like me and of course for precautionary purposes had to do the chemo. (which of course has hated). We took the same drugs but I did mine in 6months to where she is doing hers in 4 she is now on the Taxol and sits there 5 hours!!. She has 2 treatments left (very exciting). I am going to see my oncologist Monday 20th (checkup) and she will be seeing her doctor soon also to decide on having ovaries removed which we are both uncertain on (but will probaby still do) neither one of us have kids so it's a bit unnerving for us right now. :-( It's just so crazy how how got cancer then she did. Talk about parents aging with all the worries!. My other sister does have 4 kids was tested positive also for the BRCA1 and is looking into doing the preventative surgeries.
    Call this cancer these days it's like the common cold anymore! before never hardly heard of it or about it now!! geesh....
    Please feel free any questions or just chat I'm here. :-) hugs!.

    2 Comments
    • HearMeRoar's Avatar
      HearMeRoar

      Thanks, Mel. It is so frustrating, isn't it? My sister had ovarian dysgerminoma and I have IDC. I was BRCA neg for both tests. There has to be some form of genetic component to this and I hope we will soon be learning more about what is going on with both of us. ICK. CANCER SUCKS!

      almost 4 years ago
    • Grandy's Avatar
      Grandy

      I got the test... Worried about my kids and grands and even other blood relatives. I am not positive that way, so hooray! But if I were, I'd have gotten my ovaries and whatever else taken out in a heartbeat! I'm glad you all are finding out!

      almost 4 years ago
  • Mel's Avatar

    Mel asked a questionBreast Cancer

    HOPE 5K

    6 answers
    • BuckeyeShelby's Avatar
      BuckeyeShelby

      Have a great run!! Thanks for thinking of us, and go juju to your sister -- may her last 2 treatments be easy.

      almost 4 years ago
    • JeanB's Avatar
      JeanB

      Thank you for thinking of us. You are inspiring to me. God bless you and your sister.

      almost 4 years ago
    • CAS1's Avatar
      CAS1

      Good for you..One of the proven ways to kick cancers behind..Get out there and show it who is the Boss.....you....that's who.....

      almost 4 years ago
  • Mel's Avatar

    Mel started following

    User: AmieCO

  • Mel's Avatar

    Mel posted an update

    I put in wrong box really wasn't a question haa haa.
    1 year today that I had my Mastectomy!!... Feels like it was just yesterday!... Crazy how fast a year goes.

    1 Comment
    • GregP_WN's Avatar
      GregP_WN

      No worries where you post it! It's good news so shout it out. Thanks for posting and being with us. Survivors are inspiration for those who are just going through the fight. Feel free to join in the conversations and tell others what to expect and what you've been through.

      almost 4 years ago