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    Wall_anger_management

    Lately, I've wanted to do this a few times!

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    MelMom asked a questionLeukemia

    Have you been told by your Doctor that due to your treatment for your primary cancer...

    13 answers
    • Whitey61's Avatar
      Whitey61

      Was told that reoccurrence is always a concern for every cancer patient no matter the form, that's why the 5 yr NED is important, as the percentages drop after that, but as we know with Olivia Newton John. 25 yrs from diagnosis..we never know?, After reading some of the matieral about the 4 different chemo I had the risk down the road of Luekemia is a possibility?...no plans to live my life with this worry, glad to still be here 3 yrs out..keep yourself as healthy as possible as others have mentioned.

      4 months ago
    • still_fighting's Avatar
      still_fighting

      Yes, I was told by my oncologist before my first treatment. Especially because of the type of cancer we have...CLL. But, for me, it is all I can do to fight this life long cancer. Pretty much like everyone says above...just stay as healthy as you can and make sure you go to all your other doctors appointments such as family doctor, Urologist, proctologist, have your mamograms, and basically all your regular check-ups done so they can catch anything that might pop up. Try not to worry about it though (I know, easier said than done) maintain good health and live your life. God you and keep Fighting! Never give up!

      4 months ago
    • GailB's Avatar
      GailB

      If you read the information on the lls.org website about CLL secondary cancer is a risk as well is Ritcher's Syndrome which is when the CLL changes to another more aggressive form of Leukemia. They have all the statistics. Family history also plays a big part. On my mothers side of the family we have Pancreatic, Lung and lots of Breast Cancer which until my sister was diagnosed they said it was not hereditary because they were BRCA1/2 negative. Grandmother, Great Aunts, Mother, Aunt, Cousins, and now my sister(terminal) all have breast cancer and only 2 have survived it but 1 of those got the news last week that it is back for the second time. Majority carried the ATM 1 Gene which is causing the Breast cancer. Thank goodness we have a family member that worked in a pathology lab for over 40 yrs. and she held on to all tissue samples of our family members and they have been able to in 2 cases with new technology make a determination as to the primary cancer and in a few determine that they also have the ATM 1 Gene. I also carry this Gene and hope and pray that I do not get the breast cancer. Also on my fathers side have an Aunt with CLL and a Cousin with AML and my grandfather died from cancer but no one is sure exactly what it was all we know it was in his abdomen. I do know that people have gotten secondary cancer after using some of the Chemo Drugs for CLL but there are no numbers available as to the percentages because it does not happen that often.

      17 days ago
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    MelMom asked a questionLeukemia

    Do you find that when you're talking to a friend or family member about the risks of cancer that they don't get it?

    10 answers
    • GregP_WN's Avatar
      GregP_WN

      @Live, I have seen several people that talked the big talk of "I will never take that poison, or it's the treatment that kills you, not the cancer"! But they tend to change that attitude when they are told that they could die within xx months without treatment. That's why I want to hear from people's personal experience, not what I heard she said that her brothers third cousins wifes niece that had it and she died.

      8 months ago
    • geekling's Avatar
      geekling

      I walked away but you already know that GregP_WN. I was thrown back down the chute with more lies and other demeaning tales of fairies

      8 months ago
    • GailB's Avatar
      GailB

      They just don't get it and they say what they would or would not do....when in reality no one knows what they will or will not do to stay alive not even those of us that already have cancer....until your back is against the wall and your options are limited...you will do the things you thought you would not. So yeah the treatment can kill you or cause other problems but dead is dead if you do nothing and as long as you are still here you still have hope. I never thought I would do a stem cell transplant for CLL but when you are on the last known drug and your remissions are very short.....do you just wait and hope they have a new drug that works differently than the ones you have already tired or do you roll the dice and do a Stem Cell Transplant......my brother is a perfect match so it is a little less risky for me but if I wait he may not be available to me.....even though we have a big family history of cancer(CLL is nothing compared to the other cancers both sides of our family has had)heart disease and diabetes....he's one of those he's not going to get sick....heavy smoker, drink and unhealthy eating habits, over weight.....I don't get our family we are currently watching 2 cousins and a sister dying from cancer.....and none of them get it. They just proved that the breast cancer is hereditary but they don't want to be test because so far everyone that has been tested does have the gene(not surprising....took all of the women in my grandmothers generation and has taken all but 2 in my mothers generation and they have the gene and is now working thru my generation)....they won't even go and get the preventive care they need.....it has gotten every age group 20.30.40.50.60.70 in our family no one is safe but they don't get it.....I thought I would never do a trial and never a phase 1 and especially never be the 3rd person to do it.....but guess what next week I will get genetically reengineered cells from an umbilical cord and the 1st person just did it about 6wks ago. and the second did it last week during Hurricane Harvey. this is plan C and if it doesn't work I can go back and do plan B(SCT) I do know that there will come a time when my choices will be different but since I am only 60 I would like to get another 10 years at least but if I was 75 I might be only wanting another few years but who knows, have to wait until I get there.

      17 days ago
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