• merlinglen's Avatar
  • merlinglen's Avatar

    merlinglen asked a questionBreast Cancer

    Pathology back, I'm confused. No carcinoma found, just multifocular lobular insitu with pagetoid extension into ducts.

    6 answers
    • lynn1950's Avatar
      lynn1950

      Multifocal and pagetoid makes sense -then a prophylactic mastectomy, not lumpectomy.

      almost 5 years ago
    • Carol-Charlie's Avatar
      Carol-Charlie

      I'm almost twenty years older than you and I've learned one thing (well maybe a bit more than one)... Don't go back and ask, "what if?" You can't go back. You made a decision based on the information the doctor gave you, what was known at the time you made the decision. You made the right decision. Please stop whenever you find yourself slipping back into this pattern of thought, and begin thinking of the things you're enjoying in life. Have your reconstructive surgery if you wish. Take a deep breath, ask God to lead you, and live each day to the fullest. Then thank God that you are here to enjoy His beautiful world!

      almost 5 years ago
    • Harry's Avatar
      Harry

      And, always ask for the meanings of unfamiliar words. There's no reason why anyone should be expected to understand medical jargon. The words have functions when used between doctors. Patients shouldn't have to guess.

      almost 5 years ago
  • merlinglen's Avatar

    merlinglen shared an experience

    Procedure or Surgery (Mastectomy): My mastectomy was medically smooth and the care givers fine. I just felt the lost deepy and cannot find anyone who feels the same. There where many things that I have gone thru in this week post mastectomy that had not been explained to me, like the swelling and pain, the sentintnel node pain and swelling. It has not been easy for me. You can't get comfortable can't sleep and it just goes on and on...

  • merlinglen's Avatar

    merlinglen shared an experience

    Decision Point (Had the decision made for me due to more cancer being found.): Had hoped for a lumpectomy, but due to additional cancer being found I have to have a mastectomy.

    1 Comment
    • Ydnar2xer's Avatar
      Ydnar2xer

      Hi Merlinglens: Just wanted you to know that I have the exact diagnosis as you--so you are NOT alone! I am Stage 1, HER2-positive, ER neg, PR neg. I was diagnosed 8/3 and by 8/21 I had a bilateral mastectomy. I also had 21 doctor visits or tests in August! I am now 1/3 done with chemo now and feel like I can almost see the end of this difficult task. So I know what you're going through. It's tough--but if there's anything good about growing older, it's that we know we are often more capable of doing things than we sometimes think we are, at first! This is a great site where you will be uplifted and helped by people who know what cancer is like. Please feel free to email me if you like. Meanwhile, hang in there, and come back here often...you're among friends!

      almost 5 years ago
  • merlinglen's Avatar

    merlinglen shared an experience

    Oh No (Diagnosed): Still can't believe this has happen to me. Feel so alone...