Oh my! So sorry you had to go through all that after your first chemo treatment. It must have been so scary for you. Sending big ((hugs)) your way and wishing you an easier time with the rest of your treatments.
- Levittown, PA
- Member Since Jan 2017
Their Diagnoses (1)
- Patient: Invasive (Infiltrating) Ductal Carcinoma
- Patient Info: Newly diagnosed (has not begun treatment), Diagnosed: 3 months ago, Female, Age: 63, Stage III, HER2 Positive: Yes, ER Positive: No, PR Positive: No
- View this journey (3 Experiences)
mickmca15 shared an experience
Side Effects (Infection): Got first chemo txTCHP on 1/24/17
No redness no swelling no pain no tenderness no fever
Thought chemo reaction. Got tachycardia Thursday. To infusion room for liter of fluid but still tachy. Sent to er got admitted 1/27 antibiotics started, labs came back staph aureaus blood infection from port placed1/18/2017. So port out 1/30 ( PICC line in for treatment and will stay in till port pocket heals)finally home 2/3. Had home infusion of antibiotics till 2/13.
#2 chemo to 2/14 so far ok. What a wild ride.
Hair going but that's nothing compared to the last 3 weeks.
Just outing it out there, nothing is typical. Just if not feeling well speak up and be your advocate!!!
I'm so sorry you got off to such a bad start. I had the same experience so I can sympathize. I actually convinced my dr to let me leave my PICC line in for the duration of my treatment - which wasn't easy to live with/keep clean/keep dry, but made infusions a breeze. Good luck to you!
mickmca15 shared an experience
Drug or Chemo Therapy (Chemotherapy): First treatment with TDH&P (doxetaxel, carboplatin, trastuzubab and pertuzumab.
Dose dependent on body mass numbers
Took from 830 am till 4 pm because of loading dose with 2 of the 4 drugs.
Port was great access, worked great.
Premeditated with Ativan ( small dose and Benadryl )
Took a restful nap.
Had to premed mon-wed with steroids so a bit of wakeful buzz.(hard to sleep)
Now just observing process of what comes next, without trying to overreact but still pay attention to signs of side effects.
Thank all for the thoughts. Also helps to have varing personal experiences to be aware of.
DanniB wrote on mickmca15's wall
Hi Mickmca15. I just signed up on this site today with a very similar diagnosis as yours. Haven't started treatment yet, but will be very soon. I saw you are starting your first chemo today and just wanted to wish you good luck and hope you have an easy time of it with no side effects.
GregP_WN wrote on mickmca15's wall
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Jouska wrote on mickmca15's wall
mickmca15, good luck with the port tomorrow. I found it to be a simple procedure. Was a bit sore afterwards but icing the area helped a lot. Took awhile before I could sleep on that side too. Grateful I had the port for chemo - made that and the blood draws at the infusion center so much simpler. If they don't numb your port area before chemo - ask for EMLA - it is a numbing cream that really helps. I would goop it on and tape saranwrap over it before I headed off to chemo. Does require a thick application. There are quite a few of us here who are HER2+ too. Please don't hesitate to ask questions. I knew absolutely nothing about it until I found out I was.