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    mimom1 wrote on nancyjac's wall

    yes - I had my last chemo treatment about 6 weeks ago(colorectal cancer stage III- Age 70) and still have tips of my fingers are numb, my hands and fingers are sore, pins and needles in my feet upon getting up in AM , but that goes away right away, depressd because I cannot fuinction well withmy hands right now and lack of energy - I look at something I need to do and it is not in my heart to get it done !! and that is NOT ME !! How long do these side effects last >>my food tastes finally came back last week !!

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    • nancyjac's Avatar
      nancyjac

      My last chemo treatment was a year ago and I still have CIPN (chemo induced peripheral neuropathy). Sometimes it goes away on its own, other times it is permanent. I have learned to compensate for it for the most part. It gives me some balance issues so I have to constantly look at anything I am carrying (like a cup of coffee or plate or whatever) because I cannot sense if I am holding it level. I also find that moving as much as possible helps. Even now I am continuously wiggling my toes as I sit at my desk.

      over 3 years ago
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    mimom1 asked a questionColorectal (Colon) Cancer

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    • papabill's Avatar
      papabill

      Hi Mimom1, There is not a standard reaction for everyone. Seems to be different for many people. I recently completed by 12 FolFox sessions and never experienced nausea or mouth ulcers or real heavy fatigue. But for me, about session 10 started to get the chemo-induced peripheral neuropathy in my feet and finger tips, Now several months out and still has not abated. Not so much pain as discomfort. Feels like my toes are wrapped tightly in duct tape and I have boards attached to my feet. Fingers only slightly impacted. Bearable at best. My oncologist stated that the chemo-induced peripheral neuropathy can either be permanent or in many cases begin to lessen and even disappear after 18-24 months. I am optimistic. I learned from my oncologist NP and at a neuropathy support group that taking high doses of alpha lipoic acid (900-1,200mg) daily can help regenerate the nerve covering lining that protects the nerves. (I have been taking it now for numerous months and at date have not seen improvement). Once this lining is destroyed by the chemo the neuropathy begins. All this in spite of -- in my case -- at the beginning and end of each chemo session I was IV'ed with a calcium/magnesium cocktail to help prevent/lessen the potential of neuropathy. If your do get peripheral neuropathy and it becomes overly painful, hoping you do not even get neuropathy, there are meds you can be prescribed, such as Lyrica. Or others have had some success with acupuncture to relieve pain. Good luck and keep the faith.

      over 3 years ago
    • kevin_ryan's Avatar
      kevin_ryan

      I have just completed session 11 of 12 scheduled chemo sessions. The only side effects I have had has been nausea and fatigue. I have not had the mouth ulcers nor the pain in fingers and toes. The effects seem to be cumulative (my chemo has been every two weeks), so the nausea is worse after each session. I generally have two drugs during the chemo day and then have to carry a pouch with the 5FU for 46 hours. This is the worse and leaves me feeling very tired on the first day, but then gets better. My nausea is often food related and if i go too long without eating then I get the nausea, but if i can stay awake long enough to eat I am not too bad.
      I know that everyone has different reactions, but think I am fortunate that mine are minimal. I don't know if there will be more chemo yet, as my oncologist wants me to have more scans after session #12 and see what is happening. I am at stage IV, so the outlook is not real good.
      One thing I have found is that I exercise a lot and I think this helps. I go to the gym 3 times a week and am up to walking nearly 2 miles each time along with 30-40 minutes of weight training. I think that this helps kick start some of the bodies own defenses and can thoroughly recommend it.

      over 3 years ago
    • jearlesred's Avatar
      jearlesred

      I finished chemo in June of 2011. I am still experiencing neuropathy in my hands and feet (although not nearly as bad) and insomnia. Good luck!

      over 3 years ago
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    mimom1 asked a questionColorectal (Colon) Cancer

    Is there anyone living in and near Hollywood/Ft. Lauderdale Florida undergoing cancer treatments ?-I have colorectal cancer/chemo treat # 4

    • geekling's Avatar
      geekling

      I am just a bit north of you and, luckily, my treatments are 10 years behind me but, perhaps, I can be of help in any case? Do let me know. Best wishes to get through this and to a full recovery.

      almost 4 years ago
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