• miscyn57's Avatar

    miscyn57 shared an experience

    Drug or Chemo Therapy

  • miscyn57's Avatar

    miscyn57 shared an experience

    Oh No (Cancer is back/Recurred ): My Mom's AML came back in May 2014. We moved to Te as to be closer to MD Anderson. She tried 2 other clinical trial drugs, to no avail. Then her doctor put her on Nexavar and Vidaza, which seemed to work after the first cycle. However, opportunistic infections kept happening and she was in the hospital more than she was home, between October and February of this year. She died 2/18/15 in the ICU. My heart is still broken. She was such a little fighter. I was her primary caregiver for the last 6 months of her life, giving up my job to do so. I'm so lost.

    1 Comment
    • LisaLathrop's Avatar
      LisaLathrop

      I am so sorry for your loss. I fought AML alongside my mother when she was fighting lung cancer. Ultimately she lost her battle, too. She was a fighter as well....and a lifelong smoker. She didn't give up her cigarettes until a few weeks before her death. We all came to understand it as her way of dealing with her cancer....and that quitting that late in the game wouldn't have bought her much time if any at all. I am a 6 year survivor of AML and am on Nexavar as well. My oncologist referrs to it as a targeted chemo pill....that blocks the FLT3 marker on my DNA that allowed my leukemia in. I had two Bone marrow transplants....courtesy of my sister (and lifesaver) but my AML was extremely agressive. It came back 6 weeks after my first BMT. AML is no easy battle as you know. Sometimes I just wished I had a tumor based cancer that could be cut out and not have to go through the extreme chemotherapy treatment that I did and still am with the Nexavar. Side effects sometimes make me feel worse than when I was in active treatment. God bless you for being by your Mom's side. Many times I believe the caregiver's job is worse than the patients....there is nothing really you can do to help, just be there to comfort and know she is loved. Prayers and hugs to you....time heals all wounds is not even a valid comment. It will take years or more to feel better. Just keep those loving and cherished memories in the front of your mind. She is with you every day...and it's ok to cry. Just pick yourself and remember. She would want you to live life to the fullest every day you have left. Blessings my friend, Lisa

      over 1 year ago
  • miscyn57's Avatar

    miscyn57 posted an update

    My dad lost his very short battle with cancer last Friday. We only had Hospice for 4 days, but they were wonderful people. The good thing is that we were with him when he passed. I miss him terribly but know he is in a better place, free of pain and disease. He was the greatest man I ever knew! We've closed ranks as a family and for the past couple of days have gone to his favorite restaurants for a family meal. Last night, all my brothers wore one of my dad's favorite shirts when we went to his favorite steakhouse. His spirit is still with us and we are comforted that he knew how much we all loved and respected him. Thank you all for your thoughts and prayers.

    3 Comments
    • FreeBird's Avatar
      FreeBird

      Our thoughts and hearts go out to you and your family. That's beautiful that you're all together, celebrating his life.

      about 4 years ago
    • mamasdaughter's Avatar
      mamasdaughter

      Praying for peace in your hearts. Wonderful ways to celebrate his life!

      about 4 years ago
    • KarenG_WN's Avatar
      KarenG_WN

      I am so sorry for your loss. Please know our hearts are with you and your family. I love how your brothers wore your dad's shirts to the restaurant. What a tribute.

      about 4 years ago
  • miscyn57's Avatar

    miscyn57 posted an update

    Hospice came in for my dad yesterday. His condition is worse than we thought. He was placed in a hospital bed and put on oxygen. He's is not very aware of what is going on and has stopped communicating (very sudden). We've been told it's a matter of days, possibly a week or so. The doctors told us he had 6 months. The Hospice people seem to know more than the oncologists. Very sad. My heart hurts. :(

    2 Comments
    • FreeBird's Avatar
      FreeBird

      My heart goes out to you and your family. If it is his time, it's good to have Hospice to make him as comfortable as possible, and they are there for you too.

      about 4 years ago
    • KarenG_WN's Avatar
      KarenG_WN

      Our prayers are sent to you and your family.

      about 4 years ago
  • miscyn57's Avatar

    miscyn57 shared an experience

    Oh No (Cancer has spread/Metastasized): Dad's cancer was not diagnosed soon enough. Has been seeing same hematologist for the past year and no tests were ordered when he had lost a lot of weight in 3 months. Just given pain medication because he complained of back pain. Not Happy!

  • miscyn57's Avatar

    miscyn57 posted an update

    doctors have not been able to pinpoint my dad's type of primary cancer, so they are doing nothing. He's been put on the fentanyl patch (25) and sleeps all the time, or mumbles incoherently. This is not quality of life! My mom is at her lowest point in her 3rd round of chemo for her AML (which is in 100% remission) and is very stressed about this. Doctors have suggested hospice and have just given up on him. I'm extremely angry that his cancer was not caught sooner. The hospice people are coming in today to evaluate him. I need a constructive outlet for my anger! How can doctors, who have done nothing for someone, simply give up and say "oh well"? I'm afraid hospice is just going to get him drugged up until he dies and that's not what we want. Oh, I could kick a wall!