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    mistyb asked a questionBreast Cancer

    Uterine Hyperplasia after Tamoxifen

    6 answers
    • Myungclas' Avatar
      Myungclas

      My periods started again about 2 months after my last chemo. While my oncology team was surprised, they are not overly concerned. I was 47 years old at the time...that was 6 years ago. I still having regular periods at 53 (ugh). My onc ordered an ultrasound to rule out irritation in the uterus due to the tamoxifen, and it showed none, I, too, have had some cysts detected through those ultrasounds, but they've been treated with medication or waiting and seeing. I would suggest a second opinion before undergoing another major surgery.

      over 1 year ago
    • Jouska's Avatar
      Jouska

      I had what turned out to be a benign tumor on an ovary and I was spotting. I am post menopause, so a bit different situation. Anyway, my gyn/onc and I discussed it and we could either remove the one ovary, both ovaries or do a total hysterectomy. We did the total. And I am so glad we did. Just removes one more potential area for problems. I know you are much younger so there are different concerns. Being plunged into menopause is not fun, may be worth considering. If you don't remove the ovaries now, I would definitely remove them later after menopause. I am HER2+ and e+/p-, so am on Arimdex after my chemo and mastectomy. Removing the ovaries removed one more possible source of estrogen, which in my case is good. Phoenix78's advice is on the money in terms of taking care of yourself and what works for you.

      over 1 year ago
    • cak61's Avatar
      cak61

      After a year and a half on Tamoxifen, I developed a growth in my uterus. Rather than remove it and have to be more closely monitored, I opted for a complete hysterectomy. I was 49.
      It throws you into menopause. They switched me to Arimidex, and the hot flashes were unbearable. After three years went back to Tamoxifen and the flashes are more tolerable.
      As far as sex goes, low drive, and it is painful. That being said, I have older sisters who went through menopause naturally and they have those same issues.
      There is a new laser procedure called the Mona Lisa touch which helps with the pain and dryness. (But not the drive.) If you can afford it, because of course insurance will not cover it.
      I would not think they would leave your ovaries if your cancer was ER positive.
      Even though it has brought some unpleasant changes, I think menopause would have brought them to some degree anyways.I am glad to not worry about those parts. I was a bit closer to menopause than you though.
      Good luck with your decision.

      over 1 year ago
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    mistyb asked a questionBreast Cancer

    I have my one year scans next week... I thought I was doing fine and have been very upbeat and positive throughout this last xxxx year.

    17 answers
    • kalindria's Avatar
      kalindria

      Hi Misty, I'd say your feeling is entirely normal. It would be so much easier if there was a handbook we were issued with our diagnoses. I am hoping and praying that your scans are perfect and show NED.

      Anniversaries of scary events are often difficult for me so perhaps that's what you're experiencing. Just breathe slowly and know that you have overcome so much already and you can certainly overcome this. Besides, we are ALL pulling for you!

      over 3 years ago
    • sue1037's Avatar
      sue1037

      I am one year out May 17 th. I had to go today because of a problem I was having. They did right side mamogram on me today and ultra sound on both breast today. I have to wait for the left side mamogram until May. Everything came back fine. I was so scared I can't even begin to tell you. I prayed a lot this morning. I think being scared is normal. Just try to stay positive !!!!!!!!!

      over 3 years ago
    • debco148's Avatar
      debco148

      You are not alone! Every time I go for my follow ups, mammogram, blood anything, I think about it. In my heart of hearts, I believe everything is ok, but that first dx was such a shock! I had clean mammos just 12 months prior. But one thing that always helps is that I know more now. Just thinking that seems to help with the fear. When they first tell you dx, you think the worst. Then you get around others and find how many survivors and fighters there are out there. And, they inspire me everyday. But, this nasty thing humbles you too. You live your life differently not as afraid to speak your mind, or try something new. And you realize how lifestyle can play a part in disease. All of that knowledge is power and makes you stronger. Also, you are already seeing the right professionals so the instance anything would pop up, you are taken care of immediately! xxoo

      over 3 years ago
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