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    Mmsto70 posted an update

    I went to St.Louis on Wednesday to have my lab work & test check in with the doctor on how my first month of treatment went on the new drugs. The first thing he said when he walked in was "Wow, you look great!" I took that as a big positive and an early birthday present since my birthday was Thursday. Now the second month has started and the count down to the CT scan on Aug 4th!

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    User: NanaL

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    Mmsto70 wrote on NanaL's wall

    NanaL, yes I am treated at Siteman Cancer Center at Barnes Jewish Hospital in St.Louis by Dr. Brian Van Tine. I currently am on a clinical study so I travel down there once a month.

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    User: Melzie21

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    Melzie
    Thanks for sharing your journey. You said you were treated at St.Louis, Mo. I'm currently being treated by a sarcoma specialist Dr. Brian Van Tine at the Siteman Cancer Center at Barnes Jewish Hospital. I travel down once a month for a clinical study I am in. I am in Kansas City.

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      Melzie21

      I was treated (and still see him once a year) by Dr. Douglas Adkins. I absolutely love him and he's been amazing these past 8 years. I usually see him for blood work and my scan every December. But I also travel home each summer to see my thoracic surgeon there at Barnes for my upper endoscopy. Because my tumor was in my stomach located at the too near my esophagus, when they removed my tumor, they also removed the top third of my stomach and a tiny bottom portion of my esophagus. This I'm missing that sphincter. Good gets stuck a lot and the nerves are confused which makes eating hard. I see my thoracic surgeon once a year to get my esophagus stretched out. Also, since I don't have my sphincter, I have really bad acid reflux, which just sits in my esophagus. This now puts me at risk for esophageal cancer for the rest of my life. So I also have to do this once a year to check for Barrett's Syndrome, which is pre-malignant esophageal cancer cells. I also see my GI surgeon who did my original surgery to remove the tumor. They are so wondeful. I love everyone I've dealt with there. I hope you've had a similar experience. You're definitely are in good hands. How are you doing?? (My brother lives in KC I hate that I don't get to visit him much now that I live in Florida)

      over 6 years ago
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