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    mobrien14 asked a questionKidney Cancer

    Post Partial Nephrectomy Surgery

    • KarenG_WN's Avatar
      KarenG_WN

      Hi mobrien,

      I just wanted to let you know that I've reached out on our social networks to see if we can find you someone who has had similar experience and can give you some insight. We are working on it for you!

      How is your fiancee feeling now? Any better?

      Thanks,
      Karen

      over 4 years ago
    • mobrien14's Avatar
      mobrien14

      She's in the same spot as we speak, they've got her on Lyrica 50 mg, 8 mg of Xanaflex and valium 5 mg to calm her anxiety. Both medications put her to sleep and she feels like she has no energy. The pain has been better, I think. When she's talking she has noticed some hallucinations, I'm just stuck what to do. She hasn't taken as many Vicodins the past two days which is promising. She was on 8-10 a day but past few days just 4 taken over 2 day span. We are scheduled for accupuncture this Friday! It's another option we are exploring. Karen, I appreciate the community answering me, as I feel helpless and useless. I've left message for a couple of people who haven't gotten back to me, but just answering me and knowing that someone is out there helps. I want to help and take the pain away...thanks, Mike

      over 4 years ago
    • KarenG_WN's Avatar
      KarenG_WN

      Please know we are here for you in any way we can. Since it seems nobody has that specific experience, you might want to ask a more general question about being a caregiver, or even about acupuncture might help to get the conversation started and heaping you to connect with others.

      over 4 years ago
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    mobrien14 shared an experience

    Oh No (Money): Dear ,
    My fiancee (36) had a partial nephrectomy (2.8cm stage 1 grade 4 cancerous tumor) removed from her right kidney in Nov 2011 and is still experiencing these symptoms: Shooting pain through right side of body (were it was performed), causes extreme achyness, right eye twitches and vision in right eye has went from 2.50 to 3.00, right ear gets muffled or ringing, "feels like right side has been used as punching bag", right ring finger and pinkie goes numb most of the day, causes severe pain in neck and right jaw and throughout right side of her head, neck skin is sore to touch. These are the symptoms.

    She's had CT scans, MRI, blood drawn, been to Pain specialists (2), been to ER 15-20 times, doctor's visits over 25 times, and 2 neurologists who both have included the nerves are firing. Injections to illeogastric nerve. She performed 2 painful sessions of physical therapy. We are stuck.

    Her current medications or former medications are Hydrocodone (vicodin), Baclofen, Lyrica (trying it now), vallium, ibuprofen, lorazapam, Zanaflex, Tegratol, Cimbalta, Praxil, Neurotin, Percocet (No tylenol), Lydocain patches and injections.
    We are stuck and don't know if anyone has any suggestions, solutions or other avenues to pursue. We are on here because all these procedures, medications, doctor visits having produced no relief. We are both desperate and with her out of work (Denied health disability benefits from Mutual of Omaha, after several appeals, with over 150 pages of Dr's notes and charts) times of financial stability have come and gone. We are praying to find the life we once had, but no longer can vision. If anyone can help....please reply or email back.

    Sincerely,
    MOB

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    mobrien14 shared an experience

    Procedure or Surgery

  • mobrien14's Avatar

    mobrien14 shared an experience

    Side Effects (Pain): To whom can help or talk,

    My fiancee (36) had a partial nephrectomy (2.8cm stage 1 grade 4 cancerous tumor) removed from her right kidney in Nov 2011 and is still experiencing these symptoms: Shooting pain through right side of body (were it was performed), causes extreme achyness, right eye twitches and vision in right eye has went from 2.50 to 3.00, right ear gets muffled or ringing, "feels like right side has been used as punching bag", right ring finger and pinkie goes numb most of the day, causes severe pain in neck and right jaw and throughout right side of her head, neck skin is sore to touch. These are the symptoms.

    She's had CT scans, MRI, blood drawn, been to Pain specialists (2), been to ER 15-20 times, doctor's visits over 25 times, and 2 neurologists who both have included the nerves are firing. Injections to illeogastric nerve. She performed 2 painful sessions of physical therapy. We are stuck.

    Her current medications or former medications are Hydrocodone (vicodin), Baclofen, Lyrica (trying it now), vallium, ibuprofen, lorazapam, Zanaflex, Tegratol, Cimbalta, Praxil, Neurotin, Percocet (No tylenol), Lydocain patches and injections.

    We are stuck and don't know if anyone has any suggestions, solutions or other avenues to pursue. We are on here because all these procedures, medications, doctor visits having produced no relief. We are both desperate and with her out of work (Denied health disability benefits from Mutual of Omaha, after several appeals, with over 150 pages of Dr's notes and charts) times of financial stability have come and gone. We are praying to find the life we once had, but no longer can vision. If anyone can help....please reply or email back.

    Sincerely,
    MOB

    1 Comment
    • KarenG_WN's Avatar
      KarenG_WN

      Hello, I am sorry you are your fiancee are going through such a rough time right now. It seems that the doctors/nurses ought to help find some relief. In the meantime, I suggest you also post this in our Questions section. You can do this by clicking on Questions in the purple bar and then typing in the text box. Your question will then be routed to those dealing with a similar diagnosis and might be able to weigh in. Please keep us posted. You can also contact the American Cancer Society (24 hours/7 day a week hotline) at the phone number to the right and bottom of this page.

      over 4 years ago