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    Other Care (Home care): PEG tube. Adjusting to a feeding tube has probably been the easiest adjustment even if it does come with a lot of issues.
    Once the number of calories required are established, you have to figure out how often and how much to feed through the tube. Making sure the feedings are not to close together so that you're not up until 1:00 am doing them, then having to start over at 5:00am! Free water is very important for hydration. It's all about balance. You have to learn to crush meds & put through the tube praying it won't clog it! (I've only clogged it 3 times in 19 months). He's had 2 site infections in spite of the constant cleaning of the site, keeping it dry and using pre-split gauze to prevent skin ulcers on the stomach. Sometimes the tube will leak from the hole in his stomach and makes a huge mess which is nothing compared to if he coughs while doing a feeding! It shoots up & out everywhere! I've had to modify his undershirts by cutting a hole near the center and sewing a pocket on the outside for him to place the tube in so he doesn't have to tape it to his stomach. He says that's one of the best things I've ever done for him :-)
    Then there's always the psychological side....fear of getting to close (hug or snuggling) causing the tube to get smashed or worse, pulled out. It sucks for your sex life! The emotional attachment one develops with the tube is real as real can be. It's much easier for him to put 6-8 ounces of water down the tube vs struggling for 30 +/- minutes to swallow it by mouth.
    Tube has developed a pin size hole which I've had to tape up until it gets replaced on 1/18/13.

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    Celebration (Finished treatment): August 19, 2011 last day of treatment!!!!

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    Side Effects (Fatigue (tiredness)): Side effects from radiation were/are horrific!
    Was instructed to use baby shampoo to wash hair and a mild bath soap like dove. For the sun burn we used remedy lotion & aquaphor lotion. Skin started to break down in week 5 and had to apply domeboro soaks.
    Sore throat, horse voice to no voice, dry mouth,which I gave him salt & baking soda rinses & a rx the doc prescribed. The rope mucus was so bad he'd cough & cough & cough so bad he'd gag on it! Neck & shoulder stiffness & pain, diarrhea, dehydration, dizziness, hair loss on his neck, face and the back of his head, not to mention the worst of all, FATIGUE! To this day, fatigue is still a major issue. On a good day he is only good for half a day.

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    Radiation (External radiation ): 6 weeks (30 treatments) of radiation began July 11, 2011

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    Procedure or Surgery (Surgery): June 5, 2011 husband underwent second 7 hour surgery. Bilateral selected neck dissection was performed.

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    Procedure or Surgery (Surgery): June 1, 2011 husband underwent a 7 hour surgery to remove the tumor located on his epiglottis. Surgeon had to remove the entire epiglottis to get all of the cancer.
    At the same time a PEG feeding tube was placed.