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    User: CancerNews

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    Mom007 wrote on JackA's wall

    Wow, congratulations!!!!! How have you survived soo long!!!

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      JackA

      Hi Mom007- I've certainly been very fortunate but the first 7 years were quite difficult (3 transplant...2xauto's, 1xfull allo, lots of chemo, radiation, 2xclinical trials, GVHD...). Today my treatment would be much different to to so many new MM drugs approved in the last 10 years. Stay educated. -Jack

      over 3 years ago
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    Question: Muscle cramps

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    Mom007 wrote on lrcaldwell22's wall

    Greetings, I too was diagnosed at a young age...Stand tough fight the fight...Stay positive...I was almost stage 3 was given months to live, I am in remission with no signs of the cancer. Even healing lesions...I am only left with what the cancer did to my back and joints...a lot better than my life being counted in months...Good luck! <3

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    Mom007 wrote on lynniepoo's wall

    Hi lynniepoo, We have identical situations (although I am 49). You mentioned that you had surgery for back. Do you feel this was not necessary. I have the same, 5 fractures and arthritis of the spine. At the time of my diagnosis, they did not want to do surgery because I was so ill, and didn't know if it would even help enough to out weigh the surgery. They want me to see a nero-surgeon now. Opinion?

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      lynniepoo

      Yes our situations do seem similar. I too shrunk 3 inches so have had to redo my whole wardrobe and especially pants..just retired but before was working 30 hrs per week so had to buy new clothes for work. I am lucky my 3 kids are all married but they really were great. Spent two weeks in the hospital for the SCT then a week in a Ronald McDonald type house where one of my kids had to be with me 24/7. Only had 4 nights in the hospital alone. So I have a good support system and had two old friends stay with me after the SCT as my 94 year old mom was useless to take care if me when released. I really was surprised I got shingles as I had the vaccination although dr said it only made it less of a case. I am on 10 mg revlimid 21 on, 7 off which so far seems to be working. Also get zometa once a month as well. So far besides the back pain I seem to be ok but like everyone else always worried it will show it's ugly head again. Am trying to get my house ready to sell to move into something smaller. Wish I could relax and enjoy retirement but so far am just as busy. But at least I am here and can enjoy my kids, grand kids and friends. I take the morphine as the other made me loopy which I did not like!!!

      over 3 years ago
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      Mom007

      Are you "in remission", no protein ( m spike). Yes adjusting to my body has been tough on both the budget and eyes. I was the same wight my whole life now 20 lb, and very different body type. However, all that maters is that I reach my goal... being able to be here and play with my Grandchildren...my daughters are 14 and 16... Getting your house ready, I know is hard, just when you get on a roll, you have to rest, or if your crazy like me, you push yourself too hard, and have to rest the whole next day...Good luck! I'm rooting for you! And thank you again for your support and comments.

      over 3 years ago
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      lynniepoo

      Not truly in remission. M spike is .5 last time, goes up and down. I lack the gene to fight a am as was explained to me at diagnosis. The revlimid keeps it pretty level tho. I am divorced but friends (sort of) with my ex. He has pancreatic cancer but it's not spread but is still under treatment. Hard on my kids. I wish you the best as well and if you ever have any others concerns just let me know as I am sure I am feeling the same thing.

      over 3 years ago
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