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Take Me: Home People mommyNY's Profile
  • mommyNY
  • NY
  • Member Since Oct 2011
mommyNY's Avatar

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My Goodwill help 80

Their Diagnoses (1)

    • Patient: Hodgkin Disease
    • Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 9 years ago, Female, Age: 44
    • View this journey (1 Experience)

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  • mommyNY's Avatar

    mommyNY started following

    User: CancerNews

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    over 6 years ago
  • mommyNY's Avatar

    mommyNY started following

    Question: Can anyone lend advice as to how to reconnect with your spouse post-treatment? How do you find time to connect if you have young children and feel that you need to focus on yourself so that you can stay well? I feel like my time is spent on staying well

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    almost 9 years ago
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    mommyNY started following

    Question: Hodgkins Lymphoma-did 8 chemotherapy treatments and now my oncologist recommending radiation, i refused radiation and doctor then suggested another 4 treatments of chemotherapy, if PET scan is clear and cancer is gone why do more? what's your experience?

    • View
    almost 9 years ago
  • mommyNY's Avatar

    mommyNY asked a questionHodgkin Disease

    Hodgkins Lymphoma-did 8 chemotherapy treatments and now my oncologist recommending radiation, i refused radiation and doctor then suggested another 4 treatments of chemotherapy, if PET scan is clear and cancer is gone why do more? what's your experience?

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    • 9 Answers
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    almost 9 years ago
    9 answers Progress Indicator
    • leepenn's Avatar
      leepenn

      The issue with PET/CT is one of resolution. It CAN detect greater than millimeter sized tumors but cannot detect less than millimeter sized tumors. So, the idea that your PET/CT is clear means that you have no detectable cancer by that technique. You may still have small cancers remaining that cannot be seen on the PET/CT scans.

      • 0 Like
      almost 9 years ago
    • threecs' Avatar
      threecs

      The same thing happened to me. My scans were clear after 4 treatments and it was real hard for me to understand why I would need to continue. They have studied this for years and the best results are the combo. I did it because I hope I would never have to do it again. Radiation was not anywhere close to being as bad as chemo. It's quick and easy and worth it if it means no more chemo.

      • 0 Like
      over 8 years ago
    • GregRx's Avatar
      GregRx

      Like saltermd said according to current guidelines this is standard of care.

      My PET scan was also clean after my Stanford V regimen when I had completed my 12 weeks of chemo.

      They went ahead with the 30+ radiation daily treatments afterwards as the long term remission rates are better with this therapy.

      Still remission free after 14 years.

      It is your choice though! I tolerated chemotherapy WAY better than radiation re: side effects.

      • 0 Like
      over 8 years ago
  • mommyNY's Avatar

    mommyNY started following

    User: GregP_WN

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    about 9 years ago
  • mommyNY's Avatar

    mommyNY started following

    Question: is insurance covering your treatment chemo +radiation? i have BCBS (blue cross)

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    over 9 years ago

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