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    moonmaiden asked a questionBreast Cancer

    Do any doctors actually read this site?

    8 answers
    • BoiseB's Avatar
      BoiseB

      I have seen a few medical professionals on the site but they were mostly nurses. There are some non-profits out there that specialize promoting patient Dr. relations. I am fortunate to be in a Medical System that specializes in treating the whole patient The same day that I met my oncologists, I had an appointment with a social worker. I was supposed to attend an orientation class but was to ill to attend. Also my Dr.s have some wonderful nurses who stay with you after the appointment to answer any questions and translate from Dr. to English. I personally would rather have my Dr.s spending their time reading medical journals and other online sites which address the medical advancements. That being said I think Dr.s should be aware of medical professionals and able to refer their patients to them.

      7 days ago
    • barryboomer's Avatar
      barryboomer

      I'd rather go to a Doc who has MY Kind of cancer themselves.

      7 days ago
    • BarbarainBham's Avatar
      BarbarainBham

      Wouldn't you rather your doctor spend his/her spare time LEARNING about treating your cancer and new ideas than spending large amounts of time reading this blog?

      If you want your doctor to know something about you, what's wrong with telling him/her? Be an advocate for yourself. (After all, we don't own or control their personal time. We pay them for the length of our appointment ONLY.)

      Remember they have personal lives and problems, too. I know a surgeon who attended his father's funeral one morning and flew several states away the same day to see his afternoon clinic patients.

      7 days ago
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    moonmaiden asked a questionBreast Cancer

    What do you think of advertising by breast cancer charities? Do you think it affects your medical team's treatment decisions?

    25 answers
    • moonmaiden's Avatar
      moonmaiden

      One thing that I've noticed since diagnosis, is that friends and relatives pay way more attention to anything with a pink ribbon on it, one of my friends gave me so much pink ribbon stuff that I felt like saying "Breast cancer is something I have, not something I am", but I didn't because I understood that he was just trying to be supportive, sometimes you just have to smile and accept something gracefully, then put it in a drawer or on ebay or something. That being the case, that my friends and relatives have reacted that way, maybe they are sensitized to pick up on ads about breast cancer causes? Maybe workers in the industry are sensitized to it as well? Of course workers in the industry know what it really looks like, but that may be all the more reason for them to dwell on the "super patients". One of the reasons my former onc is my former onc, is because he wouldn't admit to side effects, even to a point of refusing to note them on my records unless he could chalk it up to mental illness on my part, he tried to discourage me from even looking at my records, and gee thanks, destroyed my divorce case by fudging my records. I think that was to make his stats look better though, I got sent to a for profit facility instead of the non profit I should have been sent to, and carry a great deal of rage toward my surgeon for ignoring what I was telling her about financial issues and sending me there anyway. If it isn't in the records then my former onc can record it as more successful, and if he doesn't want to acknowledge the impact of it, then he doesn't have to treat it either, for him it doesn't exist, and I'm just mental. *sigh....* I have acquired a great deal of mistrust toward the cancer industry, and the medical profession in general.

      10 months ago
    • moonmaiden's Avatar
      moonmaiden

      I find it interesting that the majority of responses do seem to be from patients who feel pressure to be super patients.....

      10 months ago
    • ChildOfGod4570's Avatar
      ChildOfGod4570

      moonmaiden, I know exactly what you are talking about. When I was first diagnosed and going through treatment, it seemed that was all one of my sisters could think of. I appreciate her, her husband, and even their dog running in a race for me and her buying me a charm for Christmas that year; however, I kind of wished she'd waited until I was out of active treatment first. The ribbons don't bother me as much now that I am nearly 3 years out of active care; I guess because I was able to distance myself from cancer a little. I have a bracelet with the ribbon on it that I now wear as not only something that goes with my pink clothes but is a badge of courage since I survived an aggressive cancer and am doing all right. I'm not a super patient and never claim to be one; I'm just happy to be a normal everyday lady who overcame the worst of a cancer battle, loves her friends and family, and is happy in a close knit church. I am so sorry too for what your doc did to you; you have enough on your plate, and you need your medical staff to take you seriously. It's your body, and you live with it 24/7; they only probe and prod and nook and cranny it for 10 minutes and go to the next patient. They don't lie down with the side effects at night, and they don't rise with them in the morning. This is why I strongly feel that advocates and therapists need to be added to the oncology team; we are more than just containers for the cancer that need the physical tumor gone; we're human beings who are traumatized by the strange and unpleasant things we're putting our entire bodies through just to get well. It often feels like when you were back in grade school when one child did the crime and wouldn't confess, so the teacher punished everybody. The children who did nothing wrong are suffering needlessly, just like our healthy cells have been doing. My mother once said it's rotten how the treatment feels worse than the disease. HUGS and God bless!

      10 months ago