HI Mrs Barber, lots of us here have been through that. It's not a good feeling to have, it's a very emotional trip.
I noticed you posted this as an update, this site works a little different that Facebook. If you will post this as a questiion in the questions tab at the top of any page, you will get more response. Questions there are routed to those with a like diagnoses, and the questions page is where most people go to browse the questions and offer help.
Give it a try, and thanks for being here and posting your journey.
Let me know if I can help with anything on the site.