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    MSfighter2015 shared an experience

    Symptoms (Respiration/breathing problems): Port placement pain is causing severe breathing problems and sever pain is this normal? Help its maki g me cry n won't stop I can't move

    1 Comment
    • Alainest's Avatar
      Alainest

      I have had no real pain from my port. I wish I could give you more insight.

      about 5 years ago
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    MSfighter2015 asked a questionMultiple Sclerosis

    How to stop excruciating blinding non stop pain from port insertion I had today

    12 answers
    • LiveWithCancer's Avatar
      LiveWithCancer

      I hope you contacted your doctor ASAP. I had a bit of pain, but nothing like you describe. Yikes!

      over 5 years ago
    • PennieEckard's Avatar
      PennieEckard

      Hopefully you have either gone to the ER or contacted the physician. I have a port and did not have pain like your describing. It does not sound normal. Be safe.

      over 5 years ago
    • Nanajen's Avatar
      Nanajen

      PLEASE go to your doctor or to the emergency room asap. You should not be having these issues with your port. My port moved, and did not even cause any pain. I did notice that I was getting short of breath. My Oncologist is supposed to have an echo heart done on me every couple of months. I have not had one since October. Anyway I am stage 3 her2 positive so I am on herceptin for a year. I had a heart scan in July and it said the port catheter had moved down in my heart and it was rubbing on the wall of my right atrium of my heart. I do not know why I was not informed immediately of this. I was informed on October 24th that I have a large blood clot that is embedded into the wall of my right atrium. I have been on Coumedan since October and the size of the clot has not changed at all. I am now seeing a heart specialist because of the blood clot. I do not want to scare you, but I do not want to see anyone go through what I have had to endure. Please let me know how you are doing after you have your port checked.

      over 5 years ago
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    MSfighter2015 shared an experience

    Procedure or Surgery (Surgery): I hate fillling out my whole MS story but I was newly married had a baby and bang I was told the terrible news. I was devistated but began the fight ASAP. I took all the injections but the disease either showed new lesions or I was too sick and tired of shoving needles in my body. I did Tysabri in[phone number redacted] and now I'm on Gilenya. 3 weeks ago I woke up blind, dizzy, slurred speech, memory loss. Walking into things and falling so got an brain MRI 2 weeks later and shore enough in 16 months my disease had 10 new active lesions all over my frontal lobe and cerebellum and lesions controlling all the symptoms I had. I was put into hospital for 1 week with steroids and pain meds but due to my veins all mostly collapsed, blown, two small or that my arms are covered in tattoos, I had a new IV everyday due to the IV falling out. I had a horrible time the last time on Tysabri because of my veins and the nurses were frustrated n this time said no not without a port put in, her veins can't take anymore. Well I had it put into my left chest today and had no pain till Dilauded wore off at home and then I felt like my left chest was hit by a truck, my left upper n lower back and ribs ft like they are broken and I can't take deep breaths at all and too ey head or arm, stand up, sit down, sit up, hug or lift anything is unbearable pain so bad I'm useless a d crying in continuous pain that is worse than child labor. I cry and pray and no matter why the pain is super bad. I can't sleep at all or eat and my husband and father r watching my breathing because its low and shallow n deep breaths kill me in pain. Its horrific n won't stop even with heavy pain meds, ice and heat! I'm scared to sleep because of pain n ow breaths. I can't take this pain its so bad its so intense and I don't need this after all the XXX with the disease progression. I need help or suggestions because I'm miserable help me

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