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    msfullofhope shared an experience

    Celebration

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    msfullofhope shared an experience

    Celebration (Anniversary): One year ago my journey with GBM started. Today is the one year anniversary of the event which changed my life. I continue to have clear scans.I work, I think, I love and I enjoy life! I am forever grateful to my husband who continues to be by side on this journey.

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    Celebration (Review of latest MRI): My husband and I met with my oncologist today and the latest MRI (dated 3/18/13) was very positive. He sees no evidence of the tumor and this scan is even better that the previous one! He is thrilled with the outcome, said that I am beating the odds and is optimistic because I have so many variables that make it seem like the stars aligned to keep this tumor at bay!

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    msfullofhope wrote on bbr54's wall

    HI bbr54
    I know this is a scary time but know you will make it through! I was diagnosed officially in August and had brain surgery to remove the GBM on August 10. I left the hospital two days after the surgery and was walking, talking, laughing and very optimisitic.

    I started radiation and chemo for 6 weeks and now, 5 months later, I am on the monthly dose of temador (5 days per week each month). I have had no major side effects . Fortunately, I have no cognitive issues and that is really important to me as I direct a social work dept..

    I have learned lots of lessons from this "visitor" as I call it....mostly to slow down, appreciate those who are right in front of you but you may have forgotten their worth, make a difference every day, no matter how small, change something or someone for the better, know you matter, and "breathe".

    Mary (aka..msfullofhope)

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    msfullofhope shared an experience

    Celebration (Status of MRI and MGMT gene): I just returned from my doctor and he said that the news is good. He said there is no evidence of the tumor and that the "cavity" where the tumor was is even "shrinking". All my blood counts and numbers are also within normal limits so we keeping moving ahead with the temodar. He also mentioned again that I happen to have this MGMT gene and that it is a good thing. Here is some info on it but from what I understand it is a more favorable prognostic indicator for longer term outcome. YEAH

    Look at the link below about the MGMT gene and ask your doctor if you can be tested for it,

    Http://neurosurgery.ucsd.edu/brain-tumor-research-mgmt/

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    msfullofhope shared an experience

    Drug or Chemo Therapy (Chemotherapy): Over the past three months, I have been on the 5 day (per month) temador regiment. I finish the third round tonight (1/13/13). I have had little to no nausea and my energy is not bad at all (working in office 2 days a week and 3 days at home). The only issue has been constipation, but it is tolerable. My blood counts have been great and things are well overall.