• medale's Avatar

    medale wrote on mtnraindancer's wall

    Down to the last one or done? Hope you are feeling better and can start on the healing!

  • mtnraindancer's Avatar

    mtnraindancer shared an experience

    Side Effects: I had my 1st mop-up round of chemo and disconnected from the pump on Thursday. I made the two hour drive to my mountain place and realized that these rounds were going to be a lot different than the first. The fatigue hit me like a ton of bricks but the worst thing was the emotional struggle I felt. I am having a hard time coming to grips with doing these last rounds of chemo, I was just feeling on the mend from the liver and colon resection and now here comes the YUCK again. I still have a lot of tightness around my incision site of the liver and having the queasiness to boot now is miserable. I told myself I would do 8 treatments which means two more to go. I know it is a personal decision to make. The first five treatments even with Avastin did not not hit me like this one did. All I wanted to do was get in my bed and cry. My eyes hurt from the chemo when I cried so that was like "icing on the cake". So much of this nasty disease is such a life consuming gamble with not guarantees. I truly reach hard to see the light at the end of the tunnel with this. I just wasn't prepared for how quickly the "yuck" would seep back in. I approached the first rounds in attach and win mode. Now that I have had the surgery to remove the tumors, it kills me to put the chemo back in my body but I'm as human as anyone else and I wrestle with thoughts of what the chemo is doing to my newly cut liver and body. I know there aren't easy answers for any of us. Just wanted to get this out of my system.

    1 Comment
    • lo15's Avatar
      lo15

      I wish you peace. Sending positive thoughts, breathe the air and try to relax. I think things will be ok for you

      5 months ago
  • mtnraindancer's Avatar

    mtnraindancer posted an update

    I almost forgot...Both surgeons said all looked great. My colon surgeon took 19 lymph nodes during the resection and all were negative. It seems the chemo worked well on the colon tumor but not so much on the liver tumors. My oncologist said she thought it was because the liver tumors were so large. She still wants to do the Folfox wihout the Avastin for the mop-up so I guess that will be the plan. Hugs, M

  • mtnraindancer's Avatar

    mtnraindancer posted an update

    I haven't posted in a while. I have been working hard to rest and recover from the liver resection. I finally feel like I may be turning the corner. I was suppose to start the mop-up chemo I have left on Tuesday but one of my blood counts was just a tad low and my oncologist wanted me to have one more week of recovery . So, I will be in the chair this coming Tuesday to knock it out I hope. So far, things have been going well. I dropped about 10 lbs with the surgery and I am trying hard to gain back before chemo. My appetite is just starting to wake back up and I have to eat small meals because I get full quickly. I'm hoping I do as well on the mop-up chemo in regards to "no nauseau" as I did with the first rounds I had. One bit of good news I wanted to share was that my CEA was 39 when I was diagnosed. After the first 4 rounds of chemo it dropped down to 12 and then to 9. As of last week, it is down to 1.7...yay!! I know it's not a marker for everyone but I sure hope it stays down. I am back in my mountains and soaking up this Spring sunshine before I have to start on the last of my chemo. Wishing all of you good things! Hugs, M

  • mtnraindancer's Avatar

    mtnraindancer posted an update

    Just sharing an update. I had my surgery on the 19th...the took the right lobe of my liver, my gallbladder and my sigmoid colon all at once. I came home to my daughter's a week later and I am recovering well. My liver surgeon said he got clean margins but I am waiting on my colon surgeon to get path results back on the lymph nodes removed during surgery...hopefully good news. I go back to MUSC this Wednesday and hopefully will have the staples removed. I walking thru the day and getting used to my new colon pipes, lol. Surgery was no picnic and I have had some rough days but very grateful to be doing so well. Thank all of you for the prayers and thoughts. Hoping life is catching each one of you with gentle hands.Hugs, M

    2 Comments
    • Jayne's Avatar
      Jayne

      Dejavu! I was just thinking of you. So glad you got some positive results and hoping for more! Take it slow....I learned that pushing myself only resulted in incision openings which lead to very unsightful scars. Wish I had listed to my doc about that. Thanks for the update!

      7 months ago
    • JaneA's Avatar
      JaneA

      I am so glad to hear that you are recovering nicely. You've been in my thoughts and prayers.

      6 months ago
  • mtnraindancer's Avatar

    mtnraindancer shared an experience

    Procedure or Surgery: Wanted to post an update..I had the right lobe of my liver resected, my sigmoid colon resected and my gallbladder removed. I was in the hospital about a week and have been recovering well. It was a hard surgery..lot of pain but finally feel like I'm crawling out of the hole, lol. The next few weeks will find me gathering info and trying to make a decision on mop-up chemo. It still makes no sense to throw chemo into a regenerating liver and a recovering digestive system in just six weeks. While I was in the hospital, my thinning hair began to come out...another wonderful side effect showing that the residual effects of the first chemo rounds are still in my body. While doing my first rounds of chemo, my tumors did not shrink much at all but my CEA did drop. I see so many who do the chemo and it comes back regardless. Granted, there a a few who do it and it never returns. Then again, did it not return because of the chemo or was it because of their individual bodies and make-up? I guess we each have to figure that call out for ourselves. Wishing everyone here a day full of good things!!..M

    1 Comment
    • BruceB's Avatar
      BruceB

      Glad to hear you are doing OK. You have been in my thoughts.

      7 months ago