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    mtnraindancer wrote on BruceB's wall

    Hi there..thanks for sharing with me. I guess we may as well throw our "modesty" out of the window at this stage of the game..lol. I was reading your posts. My colon tumor is at the sigmoid junction so not considered "rectal" . I hope all goes well with your radiation treatments and you don't feel as bad as you said your doctors are telling you that you will. Best of luck with everything...Hugs, M

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    mtnraindancer wrote on Jayne's wall

    Good morning! I can't help but come back to your profile considering we both experienced so many similar things in regards to our husbands and our own diagnosis. I wanted to ask what "mop-up" chemo you had after your colon surgery and how you handle that. Was your liver ever involved? I read about your lung involvement. I realize you had a temporary colostomy. I am hoping I won't have that but guess I'll cross that bridge if I come to it. Was the post-op chemo harder than the pre-op chemo or were they both tolerated at the same level for you? One more question...did the neuropathy in the fingertips and hands go away once you were done with chemo? I am so happy for you that you fought hard and won!! Best of holidays and huge hug!!

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    mtnraindancer wrote on Marzbarz's wall

    Thank you for the encouragement..7 years! Sounds like you kicked butt even with the areas you are still watching.Wonderful for you!..Could you share what the liver resection was like as well as any chemo you had after the surgery and how you managed with it? So glad you are here supporting with what you have already been thru so openly. God bless and have a beautiful day!

    1 Comment
    • Marzbarz's Avatar
      Marzbarz

      With my liver they had to remove a majority from both lives. Sections 1,2,3,4,5 & 8. They say I was lest with about 25% liver abs did what they do to put it all back in ‘working’ order. I had problems with the draining sites; they took time to heal. I did not have chemo afterwards. They monitor me still. I see my oncologist every 6 weeks but that’s my new reality. Reading over my dr notes from the surgeries was a total eye opener. Don’t let this monster win. Fight for every day. My life is so great. Different but great. You will kick this....there’s a really good book out there if you are looking for something that will pretty much walk you through the process. It’s on amazon called The Chemotherapy Survival Guide by Judith McKay. This was my bible.

      2 days ago
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    mtnraindancer wrote on meyati's wall

    Thank you for you sweetness!..I'm holding on to faith and prayers the whole way. Hugs, M

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    mtnraindancer posted an update

    Grateful and blessed...I had an appointment with my oncologist today to assess treatment so far. My CEA has dropped 60% after 3 rounds of chemo and I have responded well. No pain in liver area at all and bowel movements are actually "normal" which she said indicates shrinkage of the tumor.(maybe TMI?!?..lol..I know I'm among friends) I have my first CT the day after Christmas and I have sent up my Christmas wish with my prayers...shrink me enough for resection!! My side effects have been minimal with the biggest being tingling/burning in my fingers and weakened grip at times. No naseau, weight loss, diarrhea or severe fatigue yet. My doctor said we will monitor progression and could lower the Oxi if needed I don't want to yet. I love my oncologist. I cried to hear the news today and she cried with me.(hugs are powerful medicine) She shared stories of 10+ year survivors who were her patients and believes I have a chance to come out on the other side of this with treatment and resection. Who knows? All I know is today was a good day...

    4 Comments
    • Marzbarz's Avatar
      Marzbarz

      Good for you!!!! Your going to kick this.....

      2 days ago
    • BruceB's Avatar
      BruceB

      About the BMs (yes you are among friends) --- she said that I would experience a lessening of symptoms if the chemo was working. When I reported that my BMs were becoming more normal, she said that was a good sign, and sure enough, when they did the next CT it showed significant shrinkage. You're doing well!

      1 day ago
    • JaneA's Avatar
      JaneA

      You sound like you are responding to the chemo. After three rounds, my CEA dropped from 37 to 3.0 (normal). I am thrilled for you. Keep on doing what you are doing and BELIEVE in miracles.

      1 day ago