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    mtnraindancer wrote on Skyemberr's wall

    Thank you for sharing and taking the time to respond. Yes, I have the exact same diagnosis as he did. We were both active, health conscious and happy as larks. Life can sure throw a curve ball. Going thru this with my husband was the hardest thing I've ever faced. I try to be grateful in all aspects of the life I have and I suppose after going thru the journey with my husband, I was familiar with a lot and knew some of what to expect. I spent endless hours reading studies and boards while we were in hospitals so I am grateful that I have some knowledge. There are still so many unknowns so I take one day at a time and see what it brings. I am trying to heal a "chemo" sore on the inside of my nose this morning...oh joy, lol. I am humbled by the folks who have suffered for years that offer support and kindness to all on this site as well as others. Wishing love and light to them all.

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    mtnraindancer wrote on lo15's wall

    What a place to "meet" but thank you for taking the time to reply. I just finished round three of Folfox with Avastin. I was diagnosed with a tumor at the sigmoid junction and with two pretty large liver lesions. After reviewing my scans, history, etc. with a tumor review board, my doctor suggested 4-6 rounds of chemo to shrink the tumors in hopes of a resection on both my colon and liver. If all goes as I pray it does and that happens, he has recommended "mop-up" chemo after the surgery. I just wonder about the toxicity build-up with a compromised system that already has a build up of chemo from the first 4 treatments. It's like rolling the dice so I guess we all have to make our own decisions as best we can. I have read so much with going thru this with my husband...study after study...percentages and charts...It stills seems like we are all individual beings with different make-ups. I am still a believer in natural therapy but have no shame in admitting the fear that steered me to the chemo treatments. I always said I would never and now here I am. Why don't we see trial studies on natural therapies in the same numbers as we do the chemical cocktails that are standard therapy? OK..I'm not going down the ranting road...just thoughts that are coming to the surface thru this... Hugs to all!

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    mtnraindancer wrote on medale's wall

    Thank you for sharing! The best gifts in life are free and right in front of us. Be well and be happy! hugs

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    mtnraindancer asked a questionColorectal (Colon) Cancer

    Chemo after liver resection?

    4 answers
    • JaneA's Avatar

      I had mop-up chemo after my rectal cancer surgery - APR surgery which is a complex surgery and results in a permanent colostomy. My pathology report showed six positive lymph nodes so I had six more cycles of FOLFOX with Avastin.

      My side effects were the same as before surgery - fatigue for a few days - and diarrhea on the 4th day after infusion.

      Best wishes - don't borrow trouble - whether you have mop up chemo is usually based on the pathology report. I had a lung met and nothing in my liver. But I wanted to LIVE so I pledged to myself that I would "endure the cure."

      2 days ago
    • Kbaarch's Avatar

      I had Avastin and Xeloda for three months, eight months after colon and liver resection. It was harder than I expected (fatigue) but nothing major.
      In remission from stage 4 colon cancer.

      1 day ago
    • Skyemberr's Avatar

      I had Xeloda chemo with 29 days of radiation, then I went straight to a major surgery where I had part of my colon removed, my vaginal wall removed and replaced with a transplanted muscle taken from my chest, an appendectomy, ileostomy and anastomosis. The surgery was very hard on my body and I almost died due to the complications and infections.

      I was told I had to start FOLFOX chemo within 8 weeks of the surgery. This was tough because the incision had burst at the bottom due to infection, and I was on a wound-vac for a month trying to get that incision to close up enough.

      I dragged my heels as much as I could because I felt really under the weather and was concerned about taking a hit from the chemo so soon after the major surgery. It is a very valid concern! I started my chemo at about 10 weeks from surgery.

      I had very big complications that landed me in the hospital in between each round of folfox, even with the dosage cut in half. We found out later that part of the reason why is because my body reacts to FOLFOX as if it is a neurotoxin. That actually isn't too typical, thankfully.

      You are correct to be very concerned about how your body could react. Complications can be very serious. Then you have people like my mom who has the same cancer that I do, and is on round 11 of FOLFOX with barely any complications. Everyone is different.

      Unfortunately, at this point FOLFOX and FOLFIRI are the two most effective tools the docs have to do the mop up chemo and give you a shot at getting rid of the cancer, or at least getting it under control. I wish I had been able to continue my FOLFOX for a few more rounds, or at a full dosage because if I had there is a chance I would not be metastatic now.

      It was worth doing it even though it gave me complications and didn't end up curing me. It has still prolonged my life enough to give me a chance to wait for the study or treatment that will save me. Hopefully in your case at the very least, it will get you to NED.

      Please keep coming back in if you have questions or need support. We want to help you fight.

      1 day ago
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    mtnraindancer asked a questionColorectal (Colon) Cancer

    Any experience with L-Glutamine for Tingling/Neuropathy?

    • carm's Avatar

      I can only respond as an oncology nurse who has been recommending L-glutamine for years. It is widely used overseas as well. When I first started recommending it, it was a tasteless powder but now you can buy the tablets at a Walmart. Best of luck if you want to try it. Another recommendation is Outback Pain Relief which is just 4 essential oils and available on Amazon.

      4 days ago