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    MWilson posted an update

    I been having a lot of days where I go back and forth on how I feel about how I feel. The normal little aches and pains, got them and they really do not bother me. The voice lowering and having trouble swallowing again, that worries me. The thing about no insurance is not only do I not get my scans, I also have no refills on my prescriptions (been out of them for about two months), or a doctor that will do labs (money issues, again) or fill them. I know that life's a box of chocolates, but how come I always seem to get the one filled with nuts? Anyway, Slightly higher than normal hair loss, more brittle nails, tired and hungry ALL the time. It could be winter coming on, or not... Hard to talk to someone about this that I don't have to pay to see, you know?

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    MWilson asked a questionThyroid Cancer

    What does a person do after the initial I131, subsequent I131, then lack of insurance to follow up, with no means to pay out-of-pocket?

    6 answers
    • ticklingcancer's Avatar
      ticklingcancer

      There are definitely groups out there that will help you out. Follow Greg's advice. Good luck to you my friend.

      about 5 years ago
    • Scubajeans' Avatar
      Scubajeans

      I've now had 4 131 treatments. The first 3 I didn't have any insurance working part time going to college full time. After receiving the bill in the mail I wrote them letters explaining my situation and all 3 times a charity paid for the procedure. Good luck!

      about 5 years ago
    • Reel's Avatar
      Reel

      Keep working the other suggestions you have been given and also remember you can get a thyroglobulin check. It's a lot less money, and although not perfect, often it is the way doctors find any recurrence of thyroid cancer. Thyroglobulin level changes often show up before tumors can be detected with a scan... they did with me.

      about 5 years ago
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    MWilson shared an experience

    Celebration (Other): I'm still having birthdays, I'm still alive. I will fight. I will not surrender, to my dying breath. I will not be defeated.

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    MWilson shared an experience

    Decision Point (Still waiting): I am having issues with swallowing again, choking on food and liquids occasionally, and just have a feeling of 'something's not right'. But, what can I do? Without insurance, or two pennies to rub together, what's a person to do? I am at a stand-still in my life. I have five daughters and a husband, parents, other family and friends, who all need me. I just want to be around to be there for them. What options do I have? I haven't found the answer to that question, yet.

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    MWilson shared an experience

    Oh No (Health insurance issue): I was told that they needed two years of free scans, back-to-back, then another one three years out, for a total of five years to consider me 'in remission'. Well, the first scan did not go so well. My insurance ran out before the second one. (The isotopes were in very short supply.) So, no second scan. I could not afford $2,000 for it, and this was in 2008. It is 2012, past the five year mark, and I still cannot afford to get a scan. (We just had our fifth and final child in 2011, but again, could not get into an endocrinologist or get the scan before insurance ran out.)