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    Myelomamama shared an experience

    Drug or Chemo Therapy (Chemotherapy): Velcade, Revlimid and dex..

    Not bad at first the fifth and sixth cyles were really tough, insomnia. Lucky not to have had severe nausea or vomting. Took me to remission but cancer became active within a month while on Revlimid maintenance dosage. Now oncologist and consult with MM specialist want to start new chemo regimen of Kyprolis, Cytoxan and dex. Am fearful of side effects.

    1 Comment
    • lynniepoo's Avatar
      lynniepoo

      No suggestion of stem cell transplant? I started with velcade infusion and Dex. Reached a plateau and my oncologist and SCT Dr added Revlamid and within 3 months was ready for SCT. I am on Revlamid for maintenance. Altho my Drs have not suggested any change since just the Revlamid is working, I really worry about changing meds due to side affects. I know it will come at some point as I’ve been on Revlamid for 6 years. Do not look forward to changing. Good luck and welcome to What Next it’s a wonderful site for getting information, experiences and answers to questions.

      almost 2 years ago
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    Myelomamama shared an experience

    Radiation: Because of back pain, extremely painfully getting on and off the treatment table

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    Question: Severe rib pain

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    Myelomamama asked a questionMultiple Myeloma

    Anyone gone thru bone marrow transplanr at Moffitt?

    6 answers
    • Orsinia's Avatar
      Orsinia

      Yes, I had a bone marrow transplant at Moffit in 2012 and have been in remission since.

      almost 2 years ago
    • Rai's Avatar
      Rai

      At what stage is transplant recommended. I have been told I’m at Stage 1 and all to b done for now is to monitor me in 3 months? Is this how it goes?

      almost 2 years ago
    • Susanheller68's Avatar
      Susanheller68

      I'm hoping to get autologous transplant at moffitt if I ever get to remission. I'm terrified by the whole process. But am told moffitt is top notch. I see Dr sokol for lymphoma now.

      almost 2 years ago
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