• myionu's Avatar

    myionu shared an experience

    Drug or Chemo Therapy (Hormone therapy)

  • myionu's Avatar

    myionu shared an experience

    Radiation (External radiation (Instensity modulated)): Started 7th,and final week of RT.
    Increased urinary incontinence( on Flowmax).Bowl function sluggish + rectal bleeding(hemmeroids)using Proctol(6th week into RT)

    The fatigue experience just shuts me right down.Tried fighting it,but almost passed out.
    Well I hope my energy quickly returns after the RT is finished as that fatigue limits your activities.Even getting off that low fiber diet would help...

  • myionu's Avatar

    myionu shared an experience

    Drug or Chemo Therapy (Hormone therapy): Had my 1st (2) injections of Degarelix in November.
    Two nurses gave the injections one on the left,and other one on the right side of the stomach.
    no pain, but the nurse who gave me the shot on the right side left the needle in for 30 seconds,and the bump has still not gone down.
    The shot on the left side the nurse left the needle in for 1 minute ,and the lump is gone.Still took about 3 weeks.I don't think the one on the right side will be gone by the time I get the next injection.
    I will make sure that that nurse leaves the needle in for one minute..

    Only side effect was redness across the stomach,and a stinging pain in the stomach whenever you had to get up from a chair etc...only noticeable for about 4 days.
    Had a meeting with the urologist,and introduced to another program about the effects of ADT,and the benefits of exercise/diet..etc Found out that one of the ADT side effects is probably the main cause of my insomnia(hot flashes)Even though I do not really notice the effect it is enough to interrupt my sleep.

  • myionu's Avatar

    myionu shared an experience

    Procedure or Surgery (Radical retropubic prostatectomy): went into the surgery with a stage t3b only to come out of the surgery with stage 4.Surgeon said he had to be very aggressive.
    Only pain,and aggravation was from the catheter which was in for 2 weeks.Oh and the fact that the hospital only gave me 1 meal as my red blood cell count dropped below 80,and maybe needed another surgery.Reading soon got back up with 2 units transfusion,but the kitchen was not informed that I was able to eat.So 2 days with only 1 meal(jello/coffee),and the nurse stole a tray for me on the 3rd day.

    2 Comments
    • MichaelV's Avatar
      MichaelV

      Sounds like you really need to change hospital and maybe doctors.

      over 3 years ago
    • fusilier's Avatar
      fusilier

      What MichaelV Said!

      It's the job of the nursing staff to keep updated on patient status - which includes bugging the doc to change orders as necessary.

      fusilier
      James 2:24

      over 3 years ago
  • myionu's Avatar

    myionu wrote on Ross's wall

    I will be soon starting RT,and was wondering how strong your radiation dose was.
    7 weeks scheduled..prostate bed dose @ 68
    lymph nodes @ 44

    If I did not have my RP that dosage would of been @ 78

    1 Comment
    • Ross' Avatar
      Ross

      I wish I could tell you the radiation dosage. If they told me, I have forgotten. I know I went M-F for 7 weeks. Side effects were mainly fatigue. The therapists were great people to work with.
      Best wishes as you move forward.

      over 3 years ago
  • myionu's Avatar

    myionu shared an experience

    Procedure or Surgery (Radical retropubic prostatectomy)

    1 Comment
    • myionu's Avatar
      myionu

      Very aggressive 3 1/2 hour operation,and 10 hours in recovery due to complications.
      Initial biopsy results seemed rather easy with a Gleason score of 7,and a T score of T2a.
      Operation,and easy went to ohh XXX,and raised to T3,and then the pathologist report raises it to T3 N1

      Now some good news which I hope continues as my 1st PSA test 1 1/2 months after the operation has come back negligible @ 0.010. Testosterone level rose,but I heard that happens when the prostate is removed.
      Will get more info,and what happens next with the Oncologist,I hope with the recent test results I can avoid the harsher treatment with long term deprivation therapy,and maybe a weaker dose of radiation.

      almost 4 years ago