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    mysonslife started following

    User: CancerNews

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    mysonslife started following

    User: markh2o

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    mysonslife wrote on markh2o's wall

    Hi Markh2o,

    My son (we) has been through XXX and back since 6/2011 when he was diagnosed with a brain tumor. His surgery was 6/ 2011 as well. He is doing really well right now. If you need to chat with me, his mom or my son we are here for you. My son started a chat soon after diagnosis to help others. I amso proud of him for doing something positive for others in the face of cancer.

    He is 30 diagnosed at 29. The doctors think this had been growing in his head for at least 15 years.
    After surgery he had 6 weeks of daily radiation/chemo. After that he was put on more chemo up until 11/2012 when his doctors decided to give him a break. Right now no chemo (yay). Our next apt is in 1/2013, MRI's every 2 months.
    Please reach out to us if you need anything. It's important to have "people" during this time. People who have lived this life, our new normal are here for you.

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    mysonslife posted an update

    There was one nurse at Sloan who cared for my son better and more than anyone else. Unfortunately she was overworked on such a needy floor. I sent her a thank you card with a gift card for a coffee shop. Weeks later when we were in NYC on one of my sons check ups we went to visit her and say thank you again.

    My son had to be moved 3x due to post surgery "roommates".

    The first room: right after brain surgery he was moved into a room where a young man was recovering from stomach cancer. His mother and aunt were blasting music, praying loudly and somehow getting the cafe to "deliver" trays of food to them (non stop). They told us the next day they were having 12 people over to their sons room for party... what?????? that's insane.

    My son could barely open his eyes and he had to deal with blasting music, blasting TV, loud laughing people it was infuriating. that room lasted 12 hours then onto room #2.

    Room #2 was fine for a day but the poor man was dying of liver failure so the family started to come in droves and the company ignored the fact that there was another person in the room (my son). The man was in great pain and he was very uncomfortable and loud. My son couldn't get any sleep or rest with the people and the poor man in pain. Company came 24/7.

    So room #3.By this time I was not afraid to speak up. The next room was a double like all the others but only my son was in it so that was finally a great room. After being in the hospital for 5 days he was finally able to sleep. That's a conversation we should all be sharing, right?
    Speak up for yourself!! I learned the hard way.

    1 Comment
    • GregP_WN's Avatar
      GregP_WN

      You have every right to ask the people in the room to pipe down,you were nicer than I would have been, I have turned into a pretty large A ** since all this began 24 years ago. Not afraid to tell anyone what I think, or what I think they should do. Good for you, always keep yourself first, no one else usually will.

      almost 4 years ago
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    mysonslife wrote on megant13's wall

    Hi Megan,
    My son 30 years old was diagnosed with brain cancer last year.
    I'm so happy to see you are 9 years out and doing well. GOD bless and stay well....

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    mysonslife posted an update

    The whole medical care issue has started to make me so angry. My son has brain cancer .He has insurance and because he has insurance he is charged for everything which means a cazillion copays. If he didn't have insurance he'd be covered under Obama plan and all would be covered. Not only do people have to deal with cancer and their lives being torn upside down then they have to deal with possible bankruptcy and never ending bills.
    What's wrong with this picture?
    I so angry about this, we need to rally together to make people aware of the travesty.