• mystyshel's Avatar

    mystyshel started following

  • mystyshel's Avatar

    mystyshel shared an experience

    Drug or Chemo Therapy (Immunotherapy): Don't have any side effects yet as I am just starting to take dabrafenib. I am taking a starting dose of 1 pill two daily for 2 weeks then 2 pills two twice daily if I can handle it. Here is hoping.

  • mystyshel's Avatar

    mystyshel shared an experience

    Radiation (External radiation ): the radiation itself was painless. but now 4 weeks after treatment I have blisters and very red to brown skin in area. burns and itches. skin is peeling.

  • mystyshel's Avatar

    mystyshel shared an experience

    Side Effects (Pain): severe swelling of knees, hands, elbows. also joint pain in those joints and feet , hip and neck. stopped the drug.

    1 Comment
    • Terri's Avatar
      Terri

      I have Mel, but I have only had Yervoy, I am not looking forward to Keyruda ....I hope you feel better soon

      over 4 years ago
  • mystyshel's Avatar

    mystyshel shared an experience

    Oh No (stopped the drug Keyruda)

    1 Comment
    • Terri's Avatar
      Terri

      Can I ask why? I hope you are alright!

      over 4 years ago
  • mystyshel's Avatar

    mystyshel posted an update

    Hey everyone. Just wanted to say I finished a survey and it was interesting. Diary, Video diary and phone interview. Had some ups and downs doing it but all in all I also learned some things about me I was ignoring.

    1 Comment
    • GregP_WN's Avatar
      GregP_WN

      Glad to know that you were able to benefit from one of the studies.

      over 4 years ago